ArticleJMIR formative research2026
Representing Chronic Pain Experiences Through Manual and AI-Driven Vignettes From Video Blog Data With Member Checking: Participatory Design Study.
Article in JMIR formative research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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4 authors.
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Abstract
Background: Health care professional-generated vignettes are commonly used to illustrate and analyze patient experiences, shaped through clinical reflection to support provider understanding, training, and practice improvement. However, the subjective interpretation of narratives and the time-consuming manual process limit this approach. As an alternative, patients could record video blogs (vlogs) of their experiences, which can then be transformed into vignettes using GenAI and carefully designed prompts. Objective: This study aims to compare the feasibility and utility of 2 different vignette creation methods, manual and ChatGPT-3.0, from user-generated vlogs about living with chronic pain. Methods: Short commentary videos were recorded by a person living with chronic pain of unknown origin. These were transcribed and used to create vignettes. From 64 videos, three 1-minute clips were selected, each representing a key life stream: university student, international traveler, and patient with chronic pain, based on prior thematic analysis. In total, 3 vignettes were created for each creation method (manual and AI-generated). Each vignette incorporated a profile description, 3 selected user-generated video clips representing the participant's 3 life streams, researcher-generated analytic commentary for each clip (produced by a researcher with 15 years of experience in manual vignette creation for clinical use), and a brief summary of each video. A comparison between manually constructed and AI-generated vignettes evaluated coherence, contextual accuracy, narrative depth, and utility in health communication and user experience research. Additionally, the person responsible for generating the raw videos (Participant X) provided commentary on this process as a cocreator of a new method, offering critical insights into the authenticity, emotional resonance, and perceived usefulness of each vignette format. Results: This study demonstrates that manual and ChatGPT vignette creation methods are feasible approaches for analyzing and representing user-generated vlogs about living with chronic pain. Each method offers distinct utility: manual vignettes provide rich, nuanced narratives capturing emotional and social complexities, while ChatGPT-generated vignettes offer efficient, concise summaries with some loss of detail. Participant X's reflections reinforced these findings. Conclusions: ChatGPT-generated vignettes, when combined with human review, offer the potential for an efficient and scalable approach to capturing the experiences of patients with chronic pain. These vignettes could support training, communication, and sharing of patient insights.
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