ArticleRevista Cuidarte
Experiences of caregivers of twins with bronchopulmonary dysplasia and retinopathy of prematurity: a phenomenological study.
Article in Revista Cuidarte. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Authors and funding
6 authors.
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Abstract
Introduction: The premature birth of twins with bronchopulmonary dysplasia and/or retinopathy of prematurity represents an emotional, social, and financial challenge for families. Objective: To understand the lived experiences of caregivers of premature twins diagnosed with bronchopulmonary dysplasia and retinopathy of prematurity in a Kangaroo Mother Care program in Bogotá, Colombia. Materials and Methods: A phenomenological study was conducted with seven caregivers of premature twins enrolled in a Kangaroo Mother Care program between 2020 and 2022. Virtual semi-structured interviews were transcribed and analyzed using content analysis, identifying thematic categories such as emotional experiences, access to health services, and family reorganization. Ethical considerations and confidentiality were ensured. Results: Three main categories emerged: emotional experience, caregiving challenges, and socioeconomic impact. The latter included reconfiguring family roles, financial burden, and coping strategies such as community support. Discussion: The experience of caregivers of premature twins with chronic conditions reveals a multidimensional burden that calls for comprehensive, family-centered care models with ongoing interdisciplinary support and public policies that strengthen the resilience and sustainability of caregiving. Conclusion: The importance of an interdisciplinary, family-centered, and humanized approach to neonatal care is emphasized. Future research should expand the sample and explore targeted interventions for this population.
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