Evidence map›Paper›PMID 42662790›Full record

ReviewCureus2026

Navigating Barriers and Challenges: A Narrative Review of the Experiences of Autistic People and Their Families in Latin America.

Alfredo de Jesús Garza Guerra, Elisa Del Rocio Mata Cortes, Gabriela Hilian Adame Rocha, Stefan Mauricio Fernández Zambrano

Abstract readReview
In one paragraph

Review in Cureus, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Alfredo de Jesús Garza GuerraPsychiatry, Hospital Universitario Dr. José Eleuterio Gonzalez, Monterrey, MEX.
Elisa Del Rocio Mata CortesPsychiatry, Jalisco Institute of Mental Health and Addictions, University of Guadalajara, Guadalajara, MEX.
Gabriela Hilian Adame RochaPsychiatry, Hospital Universitario Dr. José Eleuterio Gonzalez, Monterrey, MEX.
Stefan Mauricio Fernández ZambranoPsychiatry, Hospital Universitario Dr. José Eleuterio Gonzalez, Monterrey, MEX.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Research on autism in Latin America has grown substantially over the past two decades; however, evidence regarding the experiences of autistic people and their families remains fragmented across countries and disciplines. This narrative review aimed to synthesize the available evidence on the experiences of autistic people and their families while navigating health, education, and social protection systems across Latin America. A literature search was conducted in PubMed for studies published between January 2000 and July 2026. The search combined the terms "autism spectrum disorder," "autism," and "autistic" with the names and demonyms of all countries in Latin America and the Caribbean, as well as the regional terms Latin America and Central America. Studies addressing pathways to autism identification, access to health services, socioeconomic inequalities, family experiences, educational inclusion, professional training, and current regional challenges were included. A total of 75 studies met the inclusion criteria and were synthesized narratively. Across the region, families consistently recognized developmental differences during the first years of life; however, pathways to autism identification were frequently prolonged by fragmented health systems, shortages of trained professionals, and limited access to specialized services. Socioeconomic and geographic inequalities further restricted access to assessment, supports, and ongoing services. Families played a central role in coordinating care, navigating complex systems, and advocating for the rights of autistic people. Educational inclusion remained limited by insufficient resources, inadequate teacher preparation, and inconsistent implementation of inclusive policies. The available evidence was concentrated in a small number of countries, highlighting important gaps in regional knowledge. Overall, autistic people and their families continue to encounter substantial barriers while navigating health, education, and social protection systems across Latin America. Strengthening early identification, expanding professional training, improving intersectoral coordination, and increasing research capacity across underrepresented countries are essential priorities for advancing equitable, coordinated, and inclusive supports throughout the region.

Indexed as

autismautistic peopleeducational inclusionfamily experienceshealth serviceslatin americasocial protection

Identifiers

PMID42662790
PMCPMC13520757

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.