Evidence map›Paper›PMID 42657194›Full record

ReviewCochrane evidence synthesis and methods2026

Bereaved Parents' Perspectives on Quality Pediatric End-of-Life Care: A Scoping Review.

Rawnaq Almahadeen, Seilin Uhm, David Wright, Alison Richardson, Richard Wagland, Katherine Hunt, Anne-Sophie Darlington

Abstract readReview
In one paragraph

Review in Cochrane evidence synthesis and methods, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Rawnaq AlmahadeenHead of Child and Maternity Health Nursing Department Mu'tah University Al-Karak Jordan.ORCID https://orcid.org/0000-0002-1758-3156
Seilin UhmSchool of Health Sciences, Faculty of Environmental and Life Sciences University of Southampton Southampton UK.ORCID https://orcid.org/0000-0002-9847-8381
David WrightSchool of Health Sciences, Faculty of Environmental and Life Sciences University of Southampton Southampton UK.ORCID https://orcid.org/0000-0003-4857-5084
Alison RichardsonClinical Professor of Cancer Nursing & End of Life Care University of Southampton & University Hospital Southampton Southampton UK.ORCID https://orcid.org/0000-0003-3127-5755
Richard WaglandMidwifery and Health, School of Health Sciences University of Southampton Southampton UK.ORCID https://orcid.org/0000-0003-1825-7587
Katherine HuntSchool of Health Sciences, Faculty of Environmental and Life Sciences University of Southampton Southampton UK.ORCID https://orcid.org/0000-0002-6173-7319
Anne-Sophie DarlingtonSchool of Health Sciences, Faculty of Environmental and Life Sciences University of Southampton Southampton UK.ORCID https://orcid.org/0000-0003-4387-7278

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Pediatric end-of-life care profoundly impacts families, yet existing reviews on bereaved parents' experiences lack methodological rigor and comprehensive synthesis. Identifying key quality indicators from parents' perspectives is essential for improving care. Objectives: This scoping review synthesizes evidence on bereaved parents' views of high-quality pediatric end-of-life care, identifying critical domains and developing a thematic framework. Methods: We conducted a scoping review adhering to PRISMA-ScR guidelines. Searches in MEDLINE, CINAHL, PsycINFO, PsycArticles, and AMED included studies without date restrictions. Two reviewers independently screened studies, extracted data, and conducted inductive thematic analysis. Results: From 4962 records, 20 studies (1997-2015) met inclusion criteria, comprising 16 qualitative and 4 quantitative studies. Three themes emerged: (1) Interpersonal Interaction (compassionate communication, shared decision-making); (2) Interdisciplinary Care (symptom management, emotional, spiritual, and sibling support); and (3) Practical Support (care accessibility, skilled staff, financial/logistical assistance). Conclusions: Bereaved parents advocate for a holistic, family-centred approach integrating empathetic communication, clinical expertise, and systemic support. These findings inform quality improvement initiatives and policy development in pediatric palliative care.

Indexed as

bereaved parentscommunicationfamily‐centered carepalliative carepediatric end‐of‐life carequality improvement

Identifiers

PMID42657194
PMCPMC13516995

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.