ArticleAlzheimer disease and associated disorders
Using a Survey to Monitor Participant Experience in a Population-Based Study of Older Adults.
Article in Alzheimer disease and associated disorders. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
4 authors.
Funding
Abstract
Consumer surveys are increasingly used in business and clinical practice, but less so in human subjects research. Within a longitudinal, population-based study of older adults, we administered a survey to monitor participants' experiences and address potential challenges. We invited participants to provide feedback on their study experience following their annual interviews, using a survey with Likert-scale questions and open-ended comments. In the first round of surveys between 2022 and 2024, 82% responded who were more likely to be White, cognitively normal, and endorse fewer than 5 depression symptoms compared with their counterparts who did not respond. In the open-ended comments, 63.2% mentioned positive overall experience, 44.3% mentioned positive interactions with staff, 19.4% mentioned the study's COVID-19 guidelines, and 17.4% shared their motivation for study participation. The survey amplified participants' voices and identified aspects of the study important to them. Understanding participants' experiences and expectations may help with retention.
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