ArticleJMIR research protocols2026
Public and Patient Involvement in Research in the Fields of Inflammatory or Autoimmune Ocular Diseases: Protocol for a Scoping Review.
Article in JMIR research protocols, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Public and Patient Involvement in Research in the Fields of Inflammatory or Autoimmune Ocular Diseases: Protocol for a Scoping Review.JMIR research protocols · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Patient and public involvement (PPI) is increasingly recognized as an important component of inclusive and patient-centered health research. However, the extent and nature of PPI in autoimmune and inflammatory ocular disease research remain unclear and inconsistently reported. Objective: This scoping review aims to map how patients and the public have been involved in research relating to autoimmune and inflammatory ocular diseases across clinical, translational, and preclinical domains. Methods: This scoping review follows the methodological framework proposed by Arksey and O'Malley and refined by Levac, while incorporating elements of JBI guidance for scoping reviews. Reporting is informed by the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist. The MEDLINE, Embase, and CINAHL databases were searched from inception to March 2025. Studies describing patient or public involvement in autoimmune or inflammatory ocular disease research were considered eligible for inclusion. Screening, data extraction, and thematic synthesis will be conducted using predefined eligibility criteria and a prepiloted charting form. Results: Database searches were completed in March 2025. Following piloting of eligibility criteria and screening procedures, title and abstract screening commenced in April 2025. Full-text screening, data charting, and synthesis were planned sequentially in accordance with the protocol described, with completion of the review anticipated in December 2026. Findings from the completed scoping review will be disseminated through peer-reviewed publication, conference presentations, and patient advocacy networks. Conclusions: This scoping review will provide the first comprehensive overview of how PPI has been implemented within autoimmune and inflammatory ocular disease research. Mapping current approaches and gaps may help support more meaningful integration of patient perspectives in future research and strengthen cocreation approaches within ophthalmology and autoimmune disease research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.