Evidence map›Paper›PMID 42627875›Full record

ArticlePLoS neglected tropical diseases2026

Reframing neglect in neglected tropical diseases and related environmental determinants: A scoping review of photovoice studies.

Noor Adilla Md Anuar Hussain, Mohd Rohaizat Hassan, Azmawati Mohammed Nawi, Aliff Faisal Ahmad Kamar, Shahrul Azhar Md Haniff, Fateen Nadhira Ismail

Abstract readScoping Review
In one paragraph

Article in PLoS neglected tropical diseases, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Noor Adilla Md Anuar HussainDepartment of Public Health Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.ORCID https://orcid.org/0009-0001-3794-6970
Mohd Rohaizat HassanDepartment of Public Health Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.ORCID https://orcid.org/0000-0002-4658-6532
Azmawati Mohammed NawiDepartment of Public Health Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.
Aliff Faisal Ahmad KamarDepartment of Public Health Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.
Shahrul Azhar Md HaniffDepartment of Public Health Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.
Fateen Nadhira IsmailDepartment of Public Health Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundNeglected tropical diseases (NTDs) affect over one billion people worldwide and are closely linked to environmental determinants, including unsafe water, poor sanitation, inadequate housing, and vector-borne exposure. Yet, the voices of affected communities remain insufficiently centred in research or policy. Photovoice, a participatory visual method, has potential to reframe the neglect of NTDs by centring affected communities and their lived experiences. This scoping review aims to explore the application of photovoice in NTD research and its related environmental determinants. METHODOLOGY/

findingsSix electronic databases were searched using terms related to photovoice and NTDs and reported in accordance with the PRISMA Extension for Scoping Reviews. Data from thirteen included studies were extracted and synthesised using thematic analysis. Most studies were conducted in Africa and focussed on skin-related NTDs. Photovoice methods were adopted across studies, including variations in participant training, equipment, and discussion formats, while retaining its core principles of ethical practice, participant-driven image production, and reflective dialogue. The degree of participation and power-sharing varied across studies. Community members were engaged as co-researchers to differing extent, with uneven inclusion across gender and age groups and limited transparency in shared analysis and decision-making. Reported outcomes included increased visibility of lived experiences, strengthened participant confidence, enhanced community dialogue, locally initiated actions, and contributions to programme reflection or policy discussions. Nevertheless, few studies implemented dissemination strategies such as exhibitions, community meetings, booklets, videos and policy dialogues to create visibility, which limits opportunities to influence policy. CONCLUSION/SIGNIFICANCE: Photovoice in NTDs research and related environmental and vector-borne determinants demonstrates the potential to reframe neglect by successfully transforming invisibility into evidence and turning community voices into advocacy, while inclusive participation, skilled facilitation, and structured pathways are needed in future studies to translate this visibility into lasting policy impact.

Indexed as

Neglected DiseasesPhotographyTropical MedicineHumans

Identifiers

PMID42627875
PMCPMC13537680

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.