Evidence map›Paper›PMID 42627835›Full record

ArticlePLOS mental health2026

Five meaningful roles of engagement: Framework for Lived Experience Roles in Mental Health Research (FLER-R).

Annelin Festervoll, Ernesto Isaac Lara, Conor Gavin, Novembre Mercier, Michael J Norton, Helene Speyer

Abstract read
In one paragraph

Article in PLOS mental health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Annelin FestervollTIPS - Clinical Research in Psychosis, Stavanger University Hospital, Stavanger, Norway.ORCID https://orcid.org/0009-0008-4847-1895
Ernesto Isaac LaraDepartment of Global Health and Social Medicine, Harvard Medical School, Boston, Massachusetts, United States of America.ORCID https://orcid.org/0009-0009-8158-3626
Conor GavinSt John of God Research Foundation, St John of God Hospitaller Services Group, Dublin, Ireland.ORCID https://orcid.org/0009-0007-5831-4538
Novembre MercierCRISP - Comprehensive Research into Schizophrenia and other Psychopathologies, Douglas Mental Health University Institute, Montreal, Canada.ORCID https://orcid.org/0009-0001-7638-4691
Michael J NortonUCD School of Medicine, University College Dublin, Dublin, Ireland.ORCID https://orcid.org/0000-0002-7420-9339
Helene SpeyerCORE - Copenhagen Research Center for Mental Health, Mental Health Center Copenhagen, Mental Health Services in the Capital Region of Denmark, Copenhagen, Denmark.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

People with lived experience are increasingly recognized as essential contributors to mental health research. Although a growing body of literature, including frameworks and guidance documents, address lived experience involvement, no existing work has systematically identified and defined the distinct roles through which people with lived experience engage in mental health research. This conceptual essay combines a narrative review of peer-reviewed and grey literature with the collective practice-based experience of the author team as lived experience contributors. The Framework for Lived Experience Roles in Mental Health Research (FLER-R) was iteratively developed and refined through collaborative consensus-building among the authors. FLER-R delineate and describe five roles which people with lived experience may undertake in mental health research, supporting the structural embedment of lived experience across mental health research practices.

Identifiers

PMID42627835
PMCPMC13496407

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.