Evidence map›Paper›PMID 42623730›Full record

ArticleMultiple sclerosis and related disorders2026

Traditional healers' knowledge, experience, and practices related to multiple sclerosis in the Republic of Guinea: A mixed methods study.

Dylan R Rice, Malé Doré, Oumar Mara, Nomin Enkhtsetseg, Caroline Gebczak, Fodé Abass Cissé, Farrah J Mateen

Abstract read
In one paragraph

Article in Multiple sclerosis and related disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Dylan R RiceDepartment of Neurology, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA; Center for Global Neurology, Robert J. Havey, MD Institute for Global Health, Northwestern University, Chicago, IL, USA. Electronic address: dylan.rice@northwestern.edu.
Malé DoréDepartment of Neurology, Ignace Deen Hospital, Conakry, Guinea.
Oumar MaraDepartment of Neurology, Ignace Deen Hospital, Conakry, Guinea.
Nomin EnkhtsetsegDepartment of Neurology, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA; Center for Global Neurology, Robert J. Havey, MD Institute for Global Health, Northwestern University, Chicago, IL, USA.
Caroline GebczakDepartment of Neurology, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA; Center for Global Neurology, Robert J. Havey, MD Institute for Global Health, Northwestern University, Chicago, IL, USA.
Fodé Abass CisséDepartment of Neurology, Ignace Deen Hospital, Conakry, Guinea.
Farrah J MateenDepartment of Neurology, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA; Center for Global Neurology, Robert J. Havey, MD Institute for Global Health, Northwestern University, Chicago, IL, USA.

Funding

Capacity Building for the Diagnosis and Treatment of Neuromyelitis Optica using Point of Care Aquaporin-4 Antibody TestingRF1TW013269 · FIC · NORTHWESTERN UNIVERSITY · PI Farrah Jasmine Mateen · 2025 to 2026
$484k
FIC NIH HHS RF1 TW013269
6 · The paper itself

Abstract

backgroundTraditional healers are central to healthcare delivery across Africa and may play an important role in pathways of care for multiple sclerosis (MS), particularly in countries with severe shortages of neurologists.

objectiveTo characterize traditional healers' knowledge, experience, and practices related to MS in the lower income, Western Sub-Saharan African country of Guinea.

methodsSemi-structured interviews with 30 traditional healers were conducted in person via snowball sampling. Interviews were conducted in local languages, transcribed, translated, and analyzed using a structured approach to summarize key domains, including training, knowledge, explanatory models, treatment practices, and referral patterns related to MS.

resultsTraditional healers (tradithérapeute) (average age 41 years, 43% women, average duration of practice 12.5 years, 73% with primary or no education) rarely had awareness of MS (20%, n = 6); however, most reported currently treating individuals with vision loss (50%, n = 15) and paralysis/motor weakness (70%, n = 21). Explanatory models for MS disease etiology were primarily spiritual-only (birafouré, illness from unseen supernatural or spiritual forces, or yakouifé, illness from witchcraft or intentional harm; 63%), with 7% endorsing physical-only etiology (gninèfé, illness from bodily/physical causes) and 30% endorsing mixed spiritual-physical beliefs. Treatment approaches included herbal (93%), ritualistic (93%), and religious (60%) modalities. Some practices were injurious. One-third of healers referred patients to physicians; 30% received physicians' referrals.

conclusionsTraditional healers in Guinea frequently encounter individuals with neurological symptoms suggestive of MS or related disorders despite limited formal awareness of MS, representing a pathway for earlier recognition and referral.

Indexed as

Health Knowledge, Attitudes, PracticeMedicine, African TraditionalMultiple SclerosisAdultFemaleGuineaHumansMaleMiddle AgedTraditional Medicine PractitionersAfricaAttitudesHealth educationHealth knowledgeMultiple sclerosisPracticeTraditional medicine

Identifiers

PMID42623730
PMCPMC13632532

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.