Evidence map›Paper›PMID 42623361›Full record

ArticlePloS one2026

Parent perspectives on services available to autistic children in Canada: A mixed methods survey study.

Isabelle Caven, Yani Hamdani, Yona Lunsky, Courtney Weaver, Melanie Penner

Abstract read
In one paragraph

Article in PloS one, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Isabelle CavenInstitute of Medical Science, University of Toronto, Canada.ORCID https://orcid.org/0009-0004-1834-284X
Yani HamdaniBloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Canada.
Yona LunskyAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Canada.
Courtney WeaverAutistic Advisor, Canada.ORCID https://orcid.org/0009-0006-3283-5768
Melanie PennerInstitute of Medical Science, University of Toronto, Canada.ORCID https://orcid.org/0000-0002-8376-9768

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesGiven the differing opinions among interest holders on services that are commonly accessed by autistic children, exploration of parent perspectives is needed to contribute to this knowledge base. Our objective was to explore perspectives of parents of autistic children on select services accessed by autistic children in Canada.

methodsUsing a mixed methods survey, the perspectives of parents of autistic children living in Canada on occupational therapy (OT), speech-language pathology (SLP) services, and applied behaviour analysis (ABA) based therapies were sought. The Theoretical Framework of Acceptability (TFA) and its constructs were used to develop the survey and served as a framework for qualitative content analysis.

resultsEighty-seven parents completed the survey. Acceptability scores were higher for OT and SLP compared to ABA (F (2, 239) = 43.42, p < 0.01). Related to the TFA construct of Ethicality, parent respondents shared concerns about potential harms of negative therapy experiences, emphasized the value of neurodiversity-affirming services and held mixed views on behavioural approaches. Under the construct of Perceived Effectiveness, acceptability was contingent on parents attributing improvements to the therapy and therapist fit. For the construct of Self-Efficacy, respondents reported the importance of therapist engagement with parents.

conclusionsAcross OT, SLP, and ABA, Ethicality, Perceived Effectiveness, and Self-Efficacy informed the perceived acceptability of autism services. This work highlights that many parents are concerned with promoting a positive autistic identity for their children, including through therapies. Future work should seek to develop shared definitions and goals for therapy between clinicians, parents/care partners, and autistic people.

Indexed as

Autistic DisorderParentsAdultApplied Behavior AnalysisCanadaChildChild, PreschoolFemaleHumansMaleOccupational TherapySpeech-Language PathologySurveys and Questionnaires

Identifiers

PMID42623361
PMCPMC13492781

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.