Evidence map›Paper›PMID 42618940›Full record

ReviewResearch involvement and engagement2026

The use of deliberative dialogue in health services research: a scoping review.

Abimbola K Saka, Kian Godhwani, Vinesha Ramasamy, Bee-Lee Soh, Mathangee Lingam, Aisha Lofters, David Gerstle, Peter Selby, Annie LeBlanc, Cheryl Pritlove and 1 more

Abstract readReview
In one paragraph

Review in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Abimbola K SakaWomen's College Hospital Research & Innovation Institute, Women's College Hospital, Toronto, ON, Canada.
Kian GodhwaniWomen's College Hospital Research & Innovation Institute, Women's College Hospital, Toronto, ON, Canada.
Vinesha RamasamyPatient Partner, Advancing Cancer Care Equity Lab, Women's College Hospital Research & Innovation Institute, Women's College Hospital, 76, Grenville St., Toronto, ON, MS5 1B2, Canada.
Bee-Lee SohPatient Partner, Advancing Cancer Care Equity Lab, Women's College Hospital Research & Innovation Institute, Women's College Hospital, 76, Grenville St., Toronto, ON, MS5 1B2, Canada.
Mathangee LingamCampbell Family Mental Health Research Institute, Centre for Mental Health and Addiction, Toronto, ON, Canada.
Aisha LoftersWomen's College Hospital Research & Innovation Institute, Women's College Hospital, Toronto, ON, Canada.
David GerstleUniversity of Toronto Mississauga, Library, Mississauga, ON, Canada.
Peter SelbyCampbell Family Mental Health Research Institute, Centre for Mental Health and Addiction, Toronto, ON, Canada.
Annie LeBlancDepartment of Family and Emergency Medicine, Faculty of Medicine, Laval University, Quebec City, QC, Canada.
Cheryl PritloveDalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
Ambreen SayaniWomen's College Hospital Research & Innovation Institute, Women's College Hospital, Toronto, ON, Canada. Ambreen.sayani@wchospital.ca.ORCID http://orcid.org/0000-0001-5391-7769

Funding

CIHR TLP - 185094
6 · The paper itself

Abstract

introductionDeliberative Dialogue (DD) is a structured participatory approach that brings together research evidence, professional expertise, and lived/living experience to support informed discussion and decision-making in health research. DD is increasingly used in the co-design, co-implementation, and co-evaluation of health-promoting interventions, where decisions must be both evidence-informed and responsive to local contexts, priorities, and needs. However, published studies vary considerably in how DD is described and reported, particularly in relation to facilitation, evidence use, participant preparation, power dynamics, and follow-up. This scoping review examined the application of DD in health services research, focusing on its methodological processes, reported outcomes and challenges, engagement of different interest-holders, and the rationales underlying its use.

methodsA scoping review was conducted following Arksey and O'Malley's framework and reported in accordance with PRISMA-ScR guidelines. Searches of OVID Medline, PsycINFO, PubMed, CINAHL, and Scopus identified 1,793 records. After screening and consolidating duplicate reports, 15 unique studies met the inclusion criteria. Data were extracted using a template informed by the Guidance for Reporting Involvement of Patients and the Public (GRIPP2), the Consolidated Standards of Reporting Trials (CONSORT), and Boyko et al.'s model of DD. The review was conducted using a critical Patient-Oriented Research (cPOR) approach, which centres lived/living experience, promotes shared decision-making between patient partners and researchers, and attends to the influence of power and structural contexts on knowledge production. The interdisciplinary team, including patient partners, researchers, clinicians, policymakers, and decision-makers, co-developed the study, contributed to data interpretation, and collaboratively refined the findings through iterative and reflexive discussion.

findingsThe 15 included studies were published between 2012 and 2024 and represented diverse geographic and health-system contexts. DD was used to support intervention co-design, implementation planning, evaluation, priority-setting, guideline development, and service improvement. Studies consistently reported the involvement of multiple interest-holder groups and the development of practical outputs, including curricula, decision aids, care models, action plans, guidelines, and priority-setting frameworks. However, reporting of methodological processes was inconsistent. Only a minority of studies described facilitation protocols, participant preparation, strategies to address power dynamics, accessibility supports, or follow-up activities. While DD was associated with enhanced trust, mutual understanding, contextual relevance, and collaborative decision-making, evidence of longer-term impacts was limited. The synthesis also revealed substantial variation in how studies reported participant engagement, evidence use, consensus-building processes, and the translation of deliberative outputs into intervention-related decisions. DISCUSSION AND RECOMMENDATIONS: This review highlights DD as a valuable approach for collaborative, evidence-informed, and context-sensitive health services research. Across the included studies, DD was used to bring together diverse forms of knowledge and generate practical outputs to support intervention development and improvement. However, methodological details related to facilitation, accessibility, participant support, management of power dynamics, decision-making processes, and longer-term impacts were often underreported. These gaps point to the need for more transparent and equity-oriented reporting of DD, particularly in relation to how people with lived/living experience are engaged and how their contributions influence intervention-related decisions. Strengthening reporting in these areas may improve the transparency, reproducibility, and accountability of DD in the co-design, co-implementation, and co-evaluation of health interventions.

Indexed as

Co-designCo-evaluationCo-implementationDeliberative dialogueHealth interventionHealth services researchInterdisciplinaryInterest-holdersKnowledge translationMulti-stakeholderPatient engagementStakeholders

Identifiers

PMID42618940
PMCPMC13491789

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.