Evidence map›Paper›PMID 42618289›Full record

ArticleBMJ health & care informatics2026

CMC-ID: identifying children and youth with medical complexity using an electronic health record.

Sara Santos, Lara Bruno-Boucher, Hallie Benjamin, Bianca Arenas-Rodriguez, Joanna Soscia, Kimberly Colapinto, Susan Miranda, Kate Nelson, Julia Orkin, Peter J Gill and 4 more

Abstract read
In one paragraph

Article in BMJ health & care informatics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Sara SantosChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Lara Bruno-BoucherChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.ORCID http://orcid.org/0000-0003-1916-0621
Hallie BenjaminChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Bianca Arenas-RodriguezChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Joanna SosciaDivision of Pediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada.
Kimberly ColapintoDivision of Pediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada.
Susan MirandaDivision of Pediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada.
Kate NelsonChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Julia OrkinChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Peter J GillChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Alene ToulanyChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Martin YiChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Lillian SungChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
Eyal CohenChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada eyal.cohen@sickkids.ca.ORCID http://orcid.org/0000-0003-0112-7188

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveWe aimed to develop and evaluate the performance of CMC-ID, an algorithm designed to identify children and youth with medical complexity (CMC) from electronic health record (EHR) data for recruitment to a transition to adult care programme, and then tested it in younger patients.

methodsCMC-ID was developed iteratively at a paediatric tertiary care hospital (SickKids) in Toronto, Canada, using a data repository derived from an Epic System EHR. The algorithm captured standard clinical criteria for CMC used throughout Ontario, Canada, including (1) Complexity, (2) Chronicity, (3) Fragility and (4) Technology dependence. We refined the CMC-ID iteratively to maximise positive predictive value (PPV). In phase I, we retrospectively identified youth aged 17 years to <18 years and conducted chart reviews to confirm CMC status, and then repeated the search in a younger cohort (1 year to <17 years) in phase II.

resultsAmong 280 unique patients identified in phase I, the last of six iterations of the algorithm identified CMC with a PPV of 85.5% (95% CI 73.3% to 93.5%). When applied to a younger cohort in phase II, 947 CMC were identified, and the algorithm performed similarly with a PPV of 89.1% (95% CI 86.9% to 91.0%). DISCUSSION: CMC-ID identified youth for recruitment to an intervention focused on transition to adult care with high PPV, and the algorithm performed similarly when applied to younger patients.

conclusionCMC-ID is a pragmatic, high-alert index to support recruitment to clinical programmes and other interventions aimed at improving CMC outcomes.

Indexed as

AlgorithmsElectronic Health RecordsTransition to Adult CareAdolescentChildChild, PreschoolChronic DiseaseFemaleHumansInfantMaleOntarioRetrospective StudiesHealth Services ResearchMedical RecordsPatient Identification Systems

Identifiers

PMID42618289
PMCPMC13504859

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.