ArticleFrontiers in digital health2026
Designing trustworthy, low-threshold care coordination: co-creating a hybrid CareCompass with rural informal caregivers.
Article in Frontiers in digital health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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6 authors.
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Abstract
Introduction: As health systems across Europe face the dual pressures of environmental change and demographic aging, the need for a socio-ecological transformation that integrates health, equity, and sustainability has never been more pressing. Informal caregivers are central to long-term care systems, yet they often face time poverty, fragmented support, and unequal access to resources. These are conditions that can also constrain participation in health-promoting and climate-friendly everyday practices. This study reports a participatory co-design process that developed and iteratively refined Methods: Using a Design Thinking framework, we conducted three sequential in-person workshops in the region Waldviertler Kernland with Results: Findings show that caregivers' primary challenge is coordination under uncertainty requiring timely access to information and resources, contingency management when support fails, financial strain, and cumulative planning effort. These insights translated into concrete equity-by-design needs: offline-first and low-threshold interaction using familiar calendar/list elements; role-based visibility and selective sharing to support privacy and prevent relational conflicts; and an onboarding model anchored in a locally trusted facilitator rather than a purely digital adoption. Prototype testing further revealed "trust and dignity" as design material, motivating a shift from a graphical network map to a list-based representation to avoid social comparison and shame. Conclusion: We contribute a transferable account of rural co-design for caregiving technologies, demonstrating how hybrid infrastructures, trust-sensitive representations, and explicit implementation conditions can be embedded early to support equitable, climate-resilient care coordination.
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