Evidence map›Paper›PMID 42599052›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Closing the Feedback Loop: Improving Communication of Findings With Aboriginal Research Participants Through Participatory Action Research.

Stephanie Smith, Tania Harris, Kelli Savietto, Melanie Robinson, Glenn Pearson, Stephen Paull, Yvonne C Anderson

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Stephanie SmithCurtin Medical School, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.ORCID 0000-0002-1932-6516
Tania HarrisHealth Consumers' Council WA, Mount Lawley, Western Australia, Australia.ORCID 0009-0003-4709-2985
Kelli SaviettoKelli Savietto, Indigenous Artist & Graphic Designer, Boorloo (Perth), Western Australia, Australia.ORCID 0009-0009-7811-1652
Melanie RobinsonChild and Adolescent Health Service, Perth, Western Australia, Australia.ORCID 0000-0002-0349-2333
Glenn PearsonThe Kids Research Institute Australia, Perth Children's Hospital, Nedlands, Western Australia, Australia.ORCID 0009-0001-4960-7423
Stephen PaullCurtin Medical School, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.ORCID 0009-0003-7270-2431
Yvonne C AndersonCurtin Medical School, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.ORCID 0000-0003-2054-338X

Funding

Child and Adolescent Community Health Research FundCurtin Medical School Seed Fund 2025, Faculty of Health Sciences, Curtin UniversityS.P.: PhD supported by a Western Australian Future Health Research and Innovation Fund and Curtin University Clinician Researcher Training scholarshipS.S.: Senior Research Fellow position funded by Curtin Medical School, Curtin University
6 · The paper itself

Abstract

backgroundCommunication of research findings often lacks appropriately tailored messaging to meet participants' expectations and needs. Guidelines for communicating with Aboriginal and Torres Strait Islander Peoples exist but are not widely applied in practice. An April 2024 workshop with 29 Aboriginal advisors explored barriers, enablers and mitigation strategies for locally adapting an evidence-based Healthy Lifestyle Program. A book was recommended as a culturally appropriate mode to share workshop findings with participants. This study explored Aboriginal Elders' experiences of receiving study findings, guidance for researchers and produced a user-friendly book reporting the cultural and place-based program considerations.

methodsParticipatory action research guided the co-creation of the book. Nine Elders from the Healthy Lifestyle Program Cultural Advisory Group, who had participated in the April 2024 workshop, took part in the June 2025 workshop. An Aboriginal facilitator conducted the workshop, supported by three non-Aboriginal researchers. Previous workshop findings were summarised. The workshop was audio-recorded, transcribed verbatim and data were analysed using reflexive thematic analysis. The Cultural Advisory Group were involved throughout the research and book development.

findingsAn overarching theme of knowledge sharing across research partnerships, communities and families connects the two themes identified. Working in partnership outlines the need for Aboriginal participants' contexts and lived realities to be recognised by researchers, and the group's previous and current research experiences. Leaving a legacy highlights the importance of the book as a lasting record, incorporating artwork and multiple formats to broaden accessibility and reach to diverse audiences, including younger generations, ensuring that community voices and values continue to guide research.

conclusionPrioritising Aboriginal and community voice in communicating findings is critical to genuine partnership in research. Consumer and community involvement within participatory action research is important to effectively implement unique research recommendations. Through this work, a book was co-created, hard copies were made available to the April 2024 participants, and an online version is available. Future research recommendations are provided. Practical tips are also provided to support researchers in building trust and collaborating effectively with Aboriginal participants/community members. LIVED EXPERIENCE OR PUBLIC CONTRIBUTION: An established Cultural Advisory Group (10 Aboriginal Elders) were involved throughout the research using a participatory action research approach, embedding consumer and community involvement. In their advisory role, the Elders guided key decisions, including endorsing the development of the book to report findings from the April 2024 workshop. The group reviewed the study findings and co-created the book with the research team. Three Elders were nominated for additional oversight, with two reviewing the final manuscript and book, and one reviewing the book's Acknowledgement of Country. This work was also supported by a representative consumer organisation, Health Consumers' Council WA.

Indexed as

CommunicationCommunity-Based Participatory ResearchAgedAustraliaCultural CompetencyHealth Services, IndigenousHumansInformation DisseminationAboriginal and Torres Strait Islander Peoplesconsumer and community involvementfeedbackhealthy lifestyleparticipatory action researchqualitative

Identifiers

PMID42599052
PMCPMC13475012

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.