Evidence map›Paper›PMID 42596758›Full record

ArticleJournal of intellectual disability research : JIDR2026

Tablet Assessment of Cognition in Down Syndrome: Comparison of Researcher and Caregiver Administration.

Emily K Schworer, Emily K Hoffman, Anna J Esbensen

Abstract readComparative Study
PubMed Publisher
In one paragraph

Article in Journal of intellectual disability research : JIDR, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Emily K SchworerWaisman Center, University of Wisconsin-Madison, Madison, Wisconsin, USA.ORCID https://orcid.org/0000-0002-5309-339X
Emily K HoffmanDivision of Developmental and Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.ORCID https://orcid.org/0009-0008-9344-2110
Anna J EsbensenDivision of Developmental and Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.ORCID https://orcid.org/0000-0003-2649-7791

Funding

Remote assessments for Alzheimer’s disease cognitive decline in adults with Down syndromeK99AG084738 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI SCHWORER, EMILY KATHERINE · 2024 to 2025
$213k
Eunice Kennedy Shriver National Institute of Child Health and Human Development R01 HD093754Jack H Rubinstein FoundationNIA NIH HHS K99 AG084738
6 · The paper itself

Abstract

backgroundIdentifying flexible and rigorous methods to administer assessments in Down syndrome research is critical for limiting participation burden. Tablet assessments have the potential to be presented remotely, but consistency between researcher and caregiver administrations is unknown.

methodParticipants were 24 children with Down syndrome aged 10-17 years and their caregivers. Children completed two sessions: one administered by their caregiver and one administered by research staff. Tablet measures were selected from the NIH Toolbox and the Cambridge Neuropsychological Test Automated Battery (CANTAB).

resultsThere were no significant differences between child performance on researcher-administered compared to caregiver-administered NIH Toolbox Flanker, CANTAB RTI and CANTAB PAL measures. Floor effects impacted additional measures with high agreement (NIH Toolbox Pattern Comparison).

conclusionsTask completion did not differ across administrators, demonstrating evidence for parents' ability to facilitate assessments. Inconsistent agreement statistics warrant future work in larger samples and additional understanding of child tablet assessment performance.

Indexed as

CaregiversComputers, HandheldDown SyndromeNeuropsychological TestsPsychometricsResearch PersonnelAdolescentChildFemaleHumansMaleParentsCANTABintellectual disabilityNIH toolboxoutcome measurement

Identifiers

PMID42596758

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.