Evidence map›Paper›PMID 42584676›Full record

ArticleEuropean journal of clinical pharmacology2026

Patients' informational needs regarding adverse drug reactions, and how this information should be provided: a mixed-methods study.

Richelle L Goes, Jette A van Lint, Bart J F van den Bemt, Naomi T Jessurun, Helen R Gosselt

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Article in European journal of clinical pharmacology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Richelle L GoesNetherlands Pharmacovigilance Centre Lareb, 's-Hertogenbosch, The Netherlands. richelle.goes@gmail.com.
Jette A van LintNetherlands Pharmacovigilance Centre Lareb, 's-Hertogenbosch, The Netherlands.
Bart J F van den BemtPharmacy, Sint Maartenskliniek, Nijmegen, The Netherlands.
Naomi T JessurunNetherlands Pharmacovigilance Centre Lareb, 's-Hertogenbosch, The Netherlands.
Helen R GosseltNetherlands Pharmacovigilance Centre Lareb, 's-Hertogenbosch, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThis study aimed to explore patients' satisfaction, informational needs, and preferences for how information on ADRs should be delivered.

methodsA digital survey was distributed among patients with chronic conditions. Closed-ended responses were analyzed quantitatively, whereas open-text responses were thematically analyzed to identify common themes. Two conceptual frameworks were developed to illustrate patients' informational needs and preferences.

results1,879 respondents participated. 47.2% of the participants were not satisfied with the information currently provided about the course of ADRs. Major themes in patients' informational needs on ADRs were: characteristics of the course of ADRs, factors that influence the course of ADRs, effects of ADRs, management of ADRs and personalized information. Major themes in their preferences for information provision were: form of information provision, platform, information provider, timing, conditions, presentation of the information, personalized information, and no preference.

conclusionThis study shows that patients desire more information on ADRs than currently available. Additionally, how this information should be provided, depends on personal needs and preferences.

Indexed as

Drug-Related Side Effects and Adverse ReactionsPatient Education as TopicPatient PreferenceAdultAgedFemaleHumansMaleMiddle AgedPatient SatisfactionSurveys and QuestionnairesYoung AdultAdverse drug reactionsHealth literacyInformation deliveryPatient communicationPatient information needsPatient perspective

Identifiers

PMID42584676

What OpenQuestion holds

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.