ArticleHealth equity
Reimagining Safe Sleep: Using Participant-Generated Photography and Community Insight to Address Infant Mortality Inequities in New York City.
Article in Health equity. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
2 authors.
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Abstract
Background: Sleep-related infant deaths disproportionately affect Black non-Hispanic families in New York City, representing a critical perinatal health equity issue. Traditional safe sleep messaging can fail to reflect the lived realities of structurally marginalized communities, creating disconnects between clinical recommendations and caregiving practices. Objective: To demonstrate how participant-generated photography can reimagine perinatal care by centering Black maternal knowledge in infant safety interventions. Methods: We conducted photo-elicitation interviews with 30 Black non-Hispanic mothers of infants aged <12 months in New York City. Participants documented their infant's sleep environments through photography ( Results: Nearly all photographs depicted sleep environments with multiple risk factors according to traditional guidelines; however, participants demonstrated sophisticated reasoning rooted in love, survival, and contextual safety. Key themes included: (1) multiple caregivers and sleep locations reflecting housing instability and extended family networks; (2) daytime and unplanned sleep driven by work schedules and practical constraints; and (3) knowledge-practice disconnects, where mothers understood clinical recommendations but adapted them to structural realities. When used in staff training, 97% of 165 home visitors and health care staff found these authentic images to be helpful for identifying real-world risks. Conclusions: Participant-generated visual methods can transform perinatal care by revealing wisdom embedded in marginalized communities' caregiving practices. Rather than viewing deviations as "non-compliance," this approach illuminates how structural inequities shape infant care and points toward more equitable, community-informed interventions.
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