Evidence map›Paper›PMID 42579144›Full record

ArticlePediatric cardiology2026

Developmental Systems Cardiology II: Implementing a Lifespan Model for Clinical Practice.

Colin J McMahon, Jeffrey Kim, Mark Lewin, Joseph Rossano

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Article in Pediatric cardiology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Colin J McMahonDepartment of Pediatric Cardiology, Children's Health Ireland, Dublin 12, Crumlin, Ireland. cmcmahon992004@yahoo.com.ORCID http://orcid.org/0000-0003-0337-9338
Jeffrey KimDepartment of Pediatric Cardiology, Texas Children's Hospital, Houston, TX, USA.
Mark LewinSeattle Children's Hospital, University of Washington Medical Center, Seattle, WA, USA.
Joseph RossanoThe Cardiac Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Survival for children with congenital heart disease (CHD) has improved substantially because of advances in surgery, intensive care, imaging, and interventional cardiology. As congenital cardiology evolves into a lifespan discipline, healthcare systems must also address neurodevelopmental vulnerability, psychosocial adaptation, educational disruption, transition complexity, and chronic multisystem disease in adulthood. Although developmental and systems-oriented models of care are emerging, practical guidance for implementation within routine congenital cardiology programs remains limited. This article presents a practical implementation framework for integrating Developmental Systems Cardiology into pediatric and adult congenital cardiology programs through multidisciplinary structures, longitudinal care pathways, neurodevelopmental surveillance, transition medicine, organizational redesign, and measurable quality frameworks. We outline practical approaches spanning fetal diagnosis through adult congenital heart disease care. These include integrated neurodevelopmental follow-up, family-centered communication systems, multidisciplinary Fontan programs, adolescent transition pathways, psychosocial support services, and workforce structures that support longitudinal continuity. Particular emphasis is placed on implementation within real-world pediatric cardiac systems, where resource variation, workforce limitations, and institutional fragmentation frequently challenge coordinated care. Developmental Systems Cardiology moves congenital cardiology beyond isolated episodic models toward integrated longitudinal systems that support adaptation across the lifespan. The framework is intended as a practical and scalable clinical model rather than a prescriptive doctrine. Implementation will appropriately vary according to institutional resources and regional healthcare systems. Future progress in congenital cardiology will depend not only on continued improvements in survival and procedural outcomes, but also on sustainable multidisciplinary systems that support neurodevelopment, family adaptation, educational participation, psychosocial wellbeing, and successful transition into adulthood.

Indexed as

Congenital heart diseaseDevelopmental systemsFontan circulationImplementation scienceMultidisciplinary careNeurodevelopmentPediatric cardiologyTransition

Identifiers

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.