Evidence map›Paper›PMID 42575544›Full record

ArticleBMJ open2026

Active participation and inclusion of children and young people with disabilities in health research in sub-Saharan Africa: a scoping review protocol.

Denis Ndekezi, Andrew Sentoogo Ssemata, Rehema Namaganda, Fiston Gatera Kitema, David Musendo, Joyce Olenja, Janet Seeley, Femke Bannink Mbazzi

Abstract read
In one paragraph

Article in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Denis NdekeziMRC/UVRI and LSHTM Uganda Research Unit, Entebbe, Central Region, Uganda denis.ndekezi@mrcuganda.org.ORCID 0000-0002-9875-1667
Andrew Sentoogo SsemataMRC/UVRI and LSHTM Uganda Research Unit, Entebbe, Central Region, Uganda.ORCID 0000-0003-0060-0842
Rehema NamagandaMRC/UVRI and LSHTM Uganda Research Unit, Entebbe, Central Region, Uganda.
Fiston Gatera KitemaLifetime Research Group, Kigali, Rwanda.
David MusendoLifetime Research Group, Kigali, Rwanda.
Joyce OlenjaDepartment of Public and Global Health, University of Nairobi, Nairobi, Kenya.
Janet SeeleyDepartment of Global Health and Development, London School of Hygiene & Tropical Medicine, London, UK.ORCID 0000-0002-0583-5272
Femke Bannink MbazziMRC/UVRI and LSHTM Uganda Research Unit, Entebbe, Central Region, Uganda.ORCID 0000-0001-6436-3431

Funding

Wellcome TrustWellcome Trust (307232)
6 · The paper itself

Abstract

introductionChildren and young people with disabilities make up a substantial population in sub-Saharan Africa yet their active participation and inclusion in health research remain limited. Although disability-inclusive and participatory approaches are increasingly recognised as essential for ethical and impactful research, evidence on how children and young people with disabilities are actively involved across research stages is inconsistent. This scoping review aims to systematically map and synthesise existing literature on the active participation and inclusion of children and young people with disabilities in health research in sub-Saharan Africa and identify reported interventions, strategies and outcomes that support such involvement. METHODS AND ANALYSIS: This review will follow the Arksey and O'Malley framework and will be reported according to PRISMA-ScR guidelines. A comprehensive search of MEDLINE, PubMed, Web of Science, Scopus, PsycINFO, Africa-Wide Information and grey literature sources will identify studies published in English from 2000 to 2025. Eligible evidence will include qualitative, quantitative and mixed-methods studies, as well as organisational reports addressing participation of children and youth aged 0-35 years with disability in health research.All identified records will be imported into Rayyan (Rayyan Systems Inc., Cambridge, MA, USA) for title and abstract screening. Two reviewers will independently screen articles, extract data using a structured charting form and synthesise findings using descriptive and thematic analysis. Any disagreements will be resolved through discussion or consultation with a third reviewer. ETHICS AND DISSEMINATION: Ethical approval is not required as this review draws solely on publicly available literature. The findings will provide a regional synthesis of disability-inclusive health research involving children and young people in sub-Saharan Africa and will inform the development of equitable, participatory research practices. Results will be disseminated through peer-reviewed publications and accessible formats, including plain-language summaries and youth-friendly presentations.

Indexed as

Children with DisabilitiesPatient ParticipationPersons with DisabilitiesAdolescentAfrica South of the SaharaChildHumansResearch DesignScoping Reviews as TopicCommunity-Based Participatory ResearchDisabled PersonsHealth Services AccessibilityPatient ParticipationYoung Adult

Identifiers

PMID42575544
PMCPMC13475139

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.