ArticleCMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne2026
Experiences of culturally Deaf people with health care access and navigation in Ontario, Canada: a qualitative co-design study.
Article in CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundEquitable access to care is a cornerstone of inclusive and fair societies, yet Deaf patients continue to encounter entrenched barriers in Canadian health care systems that compromise safety, trust, and health outcomes. We aimed to characterize the experiences of culturally Deaf community members with accessing and navigating health care, and to identify priorities for creating equitable and culturally safe care.
methodsWe conducted a qualitative co-design study grounded in a critical-interpretive paradigm in partnership with Deaf Services Canada, a nonprofit organization that provides services to members of the Deaf community. We recruited participants from multiple regions across Ontario, Canada, including urban centres, rural communities, and northern Ontario. We recruited Deaf adults, family members, interpreters, and advocates, and conducted 8 focus groups using American Sign Language (ASL)-English interpreters. We rooted reflexive thematic analysis in the sociocultural model of deafness. We carried out coding and theme development collaboratively through iterative discussions, ensuring that the analytic process reflected diverse perspectives, reinforced trustworthiness, and remained accountable to experiences of the Deaf community.
resultsWe included 23 participants. A total of 14 identified as culturally Deaf and 9 identified as hearing, with overlapping roles as family members (
interpretationDeaf community experiences highlight how the privileging of spoken language and hearing norms operates both structurally and interpersonally to shape and constrain health care access and navigation. Embedding Deaf cultural responsivity in health-professional education, standardizing provision of interpreting services, and integrating culturally safe communication pathways are critical first steps toward advancing health equity for this underrecognized group.
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