ArticleHealth care transitions2026
Participant feedback on a health care transition conference for youth with medical complexity.
Article in Health care transitions, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Each year in the United States, an estimated 1.2 million youth with chronic conditions or functional limitations reach adulthood and must transition from pediatric to adult health care, a process often fragmented by service loss, limited adult providers, and complex waiver and financial systems. The University of Alabama at Birmingham developed the Staging Transition for Every Patient (STEP) Program which includes an annual Healthcare Transition Conference. Here we describe the conference and analyze two years of attendee feedback. Methods: Conference planning followed an iterative, participatory co-design framework in which a steering committee of providers, community partners, caregivers, and individuals with lived experience shaped programming, and attendee feedback from each year informed the next. We evaluated the conference using post-conference surveys from the 2024 (n = 34) and 2025 (n = 43) events, summarized with descriptive statistics and thematic analysis; feedback from 2024 was used to tailor the 2025 program. Results: Across both years, attendees valued content on medical transition, Medicaid and community waivers, financial and legal planning, and lived experience. In 2025, 88% reported being "very likely" to attend again. In response to 2024 feedback, the 2025 program added sessions on financial planning, guardianship, day-program sessions and an expanded self-advocate panel. Despite these changes, the 2025 cohort continued to prioritize psychosocial topics including caregiver support and respite (55.8%), social support and relationships (53.5%), and aging with a disability (51.2%). Discussion/conclusion: A community-engaged, iterative conference was highly valued but revealed a persistent gap between delivered logistical content and unmet psychosocial support needs. The STEP conference offers a transferable model for community-based transition education and a method for identifying and responding to evolving family needs.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.