Evidence map›Paper›PMID 42571208›Full record

ArticleSage open aging

Facilitating Supportive Care Decision-Making for Persons with Dementia: Qualitative Insights from Health Care Professionals.

Jean O Taylor, Rashmi K Sharma, Maryam S Abdel Magid, Kimiko Domoto-Reilly, Anne M Turner

Abstract read
In one paragraph

Article in Sage open aging. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jean O TaylorDepartment of Health Systems and Population Health, School of Public Health, University of Washington, Seattle, WA, USA.ORCID https://orcid.org/0000-0002-7397-7985
Rashmi K SharmaDivision of General Internal Medicine, School of Medicine, University of Washington, Seattle, WA, USA.ORCID https://orcid.org/0000-0002-2050-4500
Maryam S Abdel MagidDepartment of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, USA.ORCID https://orcid.org/0009-0004-8565-7665
Kimiko Domoto-ReillyDepartment of Neurology, School of Medicine, University of Washington, Seattle, WA, USA.ORCID https://orcid.org/0000-0002-7396-1633
Anne M TurnerDepartment of Health Systems and Population Health, School of Public Health, University of Washington, Seattle, WA, USA.ORCID https://orcid.org/0000-0002-1915-016X

Funding

University of Washington Alzheimer's Disease Research CenterP30AG066509 · NIA · UNIVERSITY OF WASHINGTON · PI SUMAN JAYADEV · 2020 to 2026
$29.0M
Person-centered decision making: Developing a choice-based preference tool for transitions in dementia careR01AG066957 · NIA · UNIVERSITY OF WASHINGTON · PI TURNER, ANNE M · 2020 to 2025
$3.5M
NIA NIH HHS P30 AG066509NIA NIH HHS R01 AG066957
6 · The paper itself

Abstract

Background: Persons living with dementia (PLWDs) and their care partners (CPs) often face decisions about future supportive care transitions. Methods: We conducted in-depth interviews with a purposive sample of healthcare professionals (HCPs) experienced in supporting PLWDs and CPs with transitions in care. Interviews were audio recorded, transcribed, and coded using a hybrid deductive-inductive approach. We used thematic analysis to identify key themes regarding factors influencing supportive care decisions and planning and decision-making facilitators used by HCPs. Results: Qualitative analysis of 18 interviews revealed four themes: (1) difficulty thinking about the future; (2) increasing CP burden with disease progression; (3) uncertainty about costs and resources; and (4) the impact of cultural values. HCP strategies to support decision-making included building trust; timely education; and facilitating access to resources. HCP input suggested the importance of an accessible decision tool, sensitive to sociocultural values, and administered by trusted experts. Conclusion: We identified themes to inform development of a decision tool to support PLWDs and CPs supportive care transitions. HCPs highlighted the importance of early access to decision-making tools to facilitate dementia care planning and education.

Indexed as

care planningdecision-makingdementiahealth care professionalsqualitative research

Identifiers

PMID42571208
PMCPMC13451689

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.