Evidence map›Paper›PMID 42559438›Full record

ArticleJournal of the Royal Society of New Zealand2026

Reframing Data as a Taonga: A Māori Data Sovereignty Framework.

Simon Lambert, Hauiti Hakopa, Micheal Heimlick

Abstract read
In one paragraph

Article in Journal of the Royal Society of New Zealand, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Simon LambertIndigenous Studies Department University of Saskatchewan Saskatoon Canada.ORCID https://orcid.org/0000-0002-7744-6372
Hauiti HakopaTe Whare Wānanga o Awanuiārangi Whakatane New Zealand.
Micheal HeimlickTe Tira Whakamātaki Rangiora New Zealand.ORCID https://orcid.org/0000-0003-1845-4505

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The value of data continues to increase as new technologies have a seemingly insatiable demand for information. This places Indigenous peoples in the difficult position as both users of diverse data for standard and unique ends and the producers of standard and unique data for diverse ends. In Aotearoa New Zealand, Māori have entered scholarly and policy debates on data with typical relish. Yet our communities are at different stages of understanding and empowerment as the owners, producers and users of data. This article details a co-design process in producing a data framework that originated in the biosecurity space but has wider applications. While we use cultural metaphors to explain and communicate our work with the mundane and sacred, we are committed to providing practical templates for groups wanting to engage in research. But just as our data is linked to our people, so are current and future technologies that are subject to influence through societal laws and regulations. We offer some thoughts on how a safer world might arise through working in a more ethical way with Indigenous peoples and their data.

Indexed as

community‐engaged researchdata sovereigntyethicsIndigenous knowledgeMāoriresearch agreements

Identifiers

PMID42559438
PMCPMC13440601

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.