Evidence map›Paper›PMID 42558880›Full record

ArticleJournal of patient experience2026

Parent Experiences During Child Hospitalization in an International Cohort: A Qualitative Descriptive Study Guided by Family-Centered Care Principles and the Socio-Ecological Model.

Christine R Hodgson, Renee R Mehra, Amy J Lisanti, Caryl Gay, Julianne Ballard, Jennifer Rienks, Michael Clay, Thomas J Hoffmann, Samantha Gille, Maram Kiran and 5 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of patient experience, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Christine R HodgsonDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.ORCID https://orcid.org/0000-0002-3862-9811
Renee R MehraDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Amy J LisantiDepartment of Family and Community Health, School of Nursing, University of Pennsylvania, Philadelphia, PA, USA.
Caryl GayDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Julianne BallardDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Jennifer RienksFamily and Community Medicine, University of California San Francisco, San Francisco, CA, USA.
Michael ClayDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Thomas J HoffmannDepartment of Epidemiology and Biostatistics, Institute for Human Genetics, and Office of Research School of Nursing, University of California San Francisco, San Francisco, CA, USA.
Samantha GilleDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Maram KiranSchool of Medicine, University of California San Francisco, San Francisco, CA, USA.ORCID https://orcid.org/0009-0004-8097-7889
Erlin Lopez RodasDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Michelle PavlikDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Sufiya ManjuDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Nitya TuragaDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.
Linda S FranckDepartment of Family Health Care Nursing, University of California San Francisco,San Francisco, CA, USA.ORCID https://orcid.org/0000-0003-4291-9181

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

A child's hospitalization can be a major crisis for parents, and is influenced by individual, interpersonal, organizational, community, and societal factors. This study aimed to characterize the experiences of a large international cohort of parents of hospitalized children. Within a longitudinal 14-country study, parents ≥ 18 years staying at a nearby Ronald McDonald House® during their child's hospitalization completed surveys about their family's socio-demographics and hospital experience. Free-text comments were analyzed using qualitative methods, guided by family-centered care (FCC) principles and the socio-ecological model (SEM). Results were based on 2,510 of 3,350 (75%) participants who provided comments. Parents described needs and gaps in services across all dimensions of the SEM. Parents also described their sources of strength, valued services, and recommendations for support during pediatric hospitalization across FCC and SEM dimensions. In conclusion, this analysis of parents' experiences revealed common challenges faced by families of hospitalized children globally and can guide policies and practices to innovate and scale hospital, community, and societal services to reduce the burden of pediatric hospitalization on parents, families, and communities.

Indexed as

anxietychild healthdepressiondiscrimination in daily lifefamily-centered carehospitalized childhousing insecuritymental healthparentspediatricprimary caregiverself-caresocial drivers of healthsocial support

Identifiers

PMID42558880
PMCPMC13438240

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.