Evidence map›Paper›PMID 42558269›Full record

ReviewFrontiers in medicine2026

National guidelines and good practices on unmet needs in self-care, education, training, and digital tools in person-centered dementia care models across Europe-a cross-country comparative analysis.

Nadia Blecha, Anna-Karin Holst Johannsen, Magdalena Kuźma-Kozakiewicz, Pawel Cwiek, Tomasz J Sarnowski, Lina Danusevičiene, Mariia Rosol, Latchezar Trayko, Shima Mehrabian, Natko Gereš and 5 more

Abstract readReview
In one paragraph

Review in Frontiers in medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Nadia BlechaGerman Center for Neurodegenerative Diseases (DZNE), Greifswald, Germany.
Anna-Karin Holst JohannsenCenter for Assisted Living Technology, Health and Care Department, Aarhus, Denmark.
Magdalena Kuźma-KozakiewiczDepartment of Neurology, Medical University of Warsaw, Warsaw, Poland.
Pawel CwiekInstitute of Biochemistry and Biophysics, Polish Academy of Sciences, Warsaw, Poland.
Tomasz J SarnowskiInstitute of Biochemistry and Biophysics, Polish Academy of Sciences, Warsaw, Poland.
Lina DanusevičieneMental Health Division, Lithuanian University of Health Sciences (LSMU), Kaunas, Lithuania.
Mariia RosolPublic Health Center of the Ministry of Health of Ukraine, Kyiv, Ukraine.
Latchezar TraykoClinic of Neurology, University Hospital Alexandrovska, Sofia, Bulgaria.
Shima MehrabianClinic of Neurology, UH "Alexandrovska", Medical University-Sofia, Sofia, Bulgaria.
Natko GerešCroatian Institute of Public Health (CIPH), Zagreb, Croatia.
Karmen Korda OrlovićCroatian Institute of Public Health (CIPH), Zagreb, Croatia.
Zane Anna LitaunieceInstitute of Public Health, Riga East University Hospital, Rīga Stradiņš University, Riga, Latvia.
Nuria Moreno GarcíaFoundation for the Training and Research of Health Professionals of Extremadura, Extremadura, Spain.
Birutė BartkevičiūtėMental Health Division, Lithuanian University of Health Sciences (LSMU), Kaunas, Lithuania.
Jochen René ThyrianGerman Center for Neurodegenerative Diseases (DZNE), Greifswald, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: People with dementia and their caregivers regularly face unmet needs, not only in dementia care, but also in self-care, education, training, and the use of digital tools. National dementia policies, clinical guidelines, and best practices can improve dementia care and quality of life across Europe. This study examined how far current national guidelines and good practices address these domains, and where important gaps remain. The objective was to identify unmet needs in national guidelines and good practices on self-care, education and training, and digital tools for people with dementia and their caregivers. Methods: We conducted a cross-country comparative analysis in countries participating in the JADE Health collaboration: Bulgaria, Croatia, Denmark, Germany, Latvia, Lithuania, Poland, Spain, and Ukraine. Country partners provided national and regional dementia guidelines and descriptions of good practices, which were systematically reviewed and compared against selected best practices from the EU Best Practice Portal, focusing on alignment and gaps in the three domains. Results: We found substantial variation between countries in the maturity, scope, and implementation of dementia guidelines and good practices. Some countries, such as Denmark and Germany, have relatively advanced policy frameworks and clinical guidance, while others, such as Croatia, rely on promising but regionally limited programs, and several, including Bulgaria and Latvia, still depend on fragmented services. Across all countries, integrated approaches that combine structured self-care support, systematic education and training, and scalable digital tools were rare. Discussion: Best practices explicitly addressing self-care, education and training, and digital tools remain limited and unevenly implemented. Strengthening and disseminating such practices is essential to guide the further development of dementia care across Europe and to reduce persistent unmet needs among people with dementia and their caregivers.

Indexed as

best practicescross-country comparative analysisdementiadementia policiesnational policies

Identifiers

PMID42558269
PMCPMC13437392

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.