Evidence map›Paper›PMID 42558117›Full record

ArticleJournal of medical extended reality2025

American Medical Extended Reality Association Expert Consensus: Best Practices for Patient and Public Involvement in Medical Extended Reality Research.

Tom Norris, Ella Tetrault, Muskaan Mehra, Karisma Suchak, Lindsey Ross, Jan Ballesteros, Brennan M R Spiegel

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of medical extended reality, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Tom NorrisAmerican Chronic Pain Association (ACPA), Los Angeles, CA, USA.
Ella TetraultDivision of Health Services Research, Department of Medicine, Cedars-Sinai Medical Center, Los Angeles, CA, USA.ORCID https://orcid.org/0009-0002-1908-4905
Muskaan MehraDivision of Health Services Research, Department of Medicine, Cedars-Sinai Medical Center, Los Angeles, CA, USA.ORCID https://orcid.org/0009-0003-7807-1888
Karisma SuchakDivision of Health Services Research, Department of Medicine, Cedars-Sinai Medical Center, Los Angeles, CA, USA.
Lindsey RossDepartment of Neurosurgery, Cedars-Sinai Medical Center, Los Angeles, CA, USA.
Jan BallesterosDivision of Health Services Research, Department of Medicine, Cedars-Sinai Medical Center, Los Angeles, CA, USA.
Brennan M R SpiegelDivision of Health Services Research, Department of Medicine, Cedars-Sinai Medical Center, Los Angeles, CA, USA.ORCID https://orcid.org/0000-0002-4608-6896

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Patient and public involvement (PPI) is critical in medical extended reality (MedXR) research to ensure that interventions are relevant, patient-centered, and impactful. This expert consensus from the American Medical Extended Reality Association offers a practical framework for integrating patient voices throughout the research lifecycle, from study design to post-study feedback. Drawing on principles from the Patient-Centered Outcomes Research Institute, Congressionally Directed Medical Research Programs, and the National Institutes of Health, it highlights strategies for meaningful involvement of patient partners, emphasizing inclusivity, reciprocity, and transparency. Key areas of focus include best practices for recruiting and compensating patient partners, ensuring diversity and representation, simplifying communication, and addressing ethical considerations. The expert consensus addresses challenges in patient engagement specific to MedXR, offering solutions such as iterative feedback loops during prototype development and collaborative safety monitoring. Case studies provide real-world examples of how PPI insights have enhanced MedXR research, improving accessibility, relevance, and equity. This document serves as a comprehensive resource for researchers, developers, and clinicians, supporting the development of MedXR interventions that are not only scientifically rigorous but also deeply aligned with patient and public needs and priorities.

Indexed as

caregiverco-designCongressionally Directed Medical Research Programco-productionmedical extended realityNational Institutes of Healthpatientpatient and public involvementPatient-Centered Outcomes Research Institutepatient engagementpatients with lived experiences

Identifiers

PMID42558117
PMCPMC13387369

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.