Evidence map›Paper›PMID 42557429›Full record

ReviewJournal of general internal medicine2026

The Medicare Hospice Benefit's Origins: Lessons on End-of-Life Caregiving.

Helen P Knight, Richard E Leiter

Abstract readHistorical ArticleReview
In one paragraph

Review in Journal of general internal medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Helen P KnightDepartment of Supportive Oncology, Dana-Farber Cancer Institute, Boston, MA, USA. helen_knight@dfci.harvard.edu.ORCID http://orcid.org/0009-0005-7642-5093
Richard E LeiterDepartment of Supportive Oncology, Dana-Farber Cancer Institute, Boston, MA, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Legislation in 1982 formalized hospice care as a Medicare-reimbursed service. In the years that have followed, while many Americans have benefited from hospice's holistic, comfort-focused care, Medicare reimbursement frequently prevents hospices from providing the degree of caregiving support that patients and their informal caregivers need. Prior to the Medicare Hospice Benefit, leaders of the hospice movement emphasized that informal caregivers need significant support at the end of life, including custodial support through options for facility-based care for dying patients. The Medicare Hospice Benefit was designed to contain healthcare spending, resulting in a structure of care that curtailed caregiving support. This history illustrates key themes that remain relevant to public discourse today, including the extent to which payers should provide caregiving support and the role of facilities in providing custodial care at the end of life.

Indexed as

CaregiversHospice CareMedicareTerminal CareHistory, 20th CenturyHistory, 21st CenturyHumansUnited Statescaregivinghistory of medicinehospiceMedicarepalliative care

Identifiers

PMID42557429
PMCPMC13631179

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.