ArticleHealth expectations : an international journal of public participation in health care and health policy2026
Exploring Parent Carer Empowerment in Childhood Onset Disability: A Qualitative Study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
1 citing paper in PubMed.
- Empowering Parent Carers of Children With Neurodisability in Healthcare Settings: Co-Producing a Theory of Change for Intervention Development.Health expectations : an international journal of public participation in health care and health policy · 2026Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundSupporting parent carers to have greater agency and control over the decisions and actions regarding the care of their child is a central tenet of contemporary health and social care policy. This study explored contextual factors influencing the empowerment of parent carers of disabled children from the perspective of a range of stakeholders.
methodsWe used focus groups and semi-structured interviews to collect data from 28 participants: fifteen parent carers, nine children's service providers, three service managers and one commissioner. Interviews and focus groups were recorded and transcribed verbatim. Data were analysed using a process of reflexive thematic analysis.
findingsWe propose a novel model that conceptualises the complex system of interrelated contextual factors influencing parent carer empowerment. This model offers a framework to present the three main themes we generated from the data: (i) Lived Experience: Roles, identities and interactions, (ii)Tensions in a Complex System, and (iii) Information, Knowledge and Wisdom.
conclusionsThe complex system influences both parent carers and service providers, constructing and shaping how these roles and identities are experienced and performed. This is particularly apparent in the interactions between parent carers and service providers, where information is shared, knowledge is created and privileged, and where parent carers can be empowered or disempowered. PATIENT/PUBLIC CONTRIBUTION: Our project team includes a group of parent carer research partners. They have been fully involved in planning and design, data generation, data analysis and co-authorship of the paper. We have recorded involvement using the GRIPP2-short form.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.