Evidence map›Paper›PMID 42553103›Full record

ArticleFrontiers in public health2026

Evolution and synergy of healthcare security policies for rare diseases in China: a quantitative content analysis.

Jingying Gao, Chaojie Liu, Xinyang Wang, Haojia Cai, Yuqing Tang

Abstract read
In one paragraph

Article in Frontiers in public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jingying GaoSchool of Medicine and Health Management, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, Hubei, China.
Chaojie LiuSchool of Psychology and Public Health, La Trobe University, Melbourne, VIC, Australia.
Xinyang WangSchool of Medicine and Health Management, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, Hubei, China.
Haojia CaiSchool of Medicine and Health Management, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, Hubei, China.
Yuqing TangSchool of Medicine and Health Management, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, Hubei, China.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Managing rare diseases presents substantial challenges to achieving universal health coverage. Despite growing policy interest, limited research has explored the evolution and synergy of healthcare security policies targeting rare diseases. This study addresses this gap through a case study of China. Methods: An innovative analytical framework was developed, structured around three dimensions of policy synergy: horizontal, vertical, and temporal. A comprehensive dataset of national and provincial policy documents related to healthcare security for rare diseases was systematically collected. Analytical techniques included quantitative content analysis, word frequency analysis, and semantic network analysis. Results: A total of 314 policies enacted between 2001 and 2025 remained effective at the time of data collection, showing a general upward trend in both quantity and policy strength. However, the majority of policies were notices and announcements, which typically carry lower enforcement authority than ordinances and regulations. While a diverse array of policy instruments was employed, horizontal synergy across sectors remained limited. Vertically, national policies emphasized screening and support for children with rare diseases, whereas provincial policies focused more on outpatient service subsidies. Conclusion: Rare diseases have gained increasing attention within China's healthcare security policy landscape. Nonetheless, significant gaps in horizontal and vertical policy synergy persist. A systems-based approach is recommended to enhance policy integration and effectiveness.

Indexed as

Health PolicyRare DiseasesUniversal Health InsuranceChinaHumansChinahealthcare securityhealth policypolicy synergyrare diseases

Identifiers

PMID42553103
PMCPMC13433357

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.