Evidence map›Paper›PMID 42548393›Full record

ArticleCHEST pulmonary2025

Caring for Rural Patients With Interstitial Lung Disease: Perspectives of Pulmonary Fibrosis Foundation Care Center Network Nurses and Providers.

Alison M DeDent, Jessica E Shore, Rebecca Bascom, Janell Reichuber, Mary Beth Scholand, Ryan Boente, Anoop M Nambiar, Sonye K Danoff, Franck Rahaghi, Tejaswini Kulkarni and 2 more

Abstract read
In one paragraph

Article in CHEST pulmonary, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Alison M DeDentDepartment of Medicine, Division of Pulmonary and Critical Care Medicine, University of California, San Francisco, San Francisco, CA.
Jessica E ShorePulmonary Fibrosis Foundation, Chicago, IL.
Rebecca BascomCollege of Medicine, The Pennsylvania State University, Hershey, PA.
Janell ReichuberDepartment of Pulmonary and Critical Care Medicine, University of Kansas Medical Center, Kansas City, KS.
Mary Beth ScholandPulmonary Division, Department of Internal Medicine, University of Utah, Salt Lake City, UT.
Ryan BoenteDepartment of Pulmonary, Critical Care, Sleep and Occupational Medicine, Indiana University School of Medicine, Indianapolis, IN.
Anoop M NambiarDivision of Pulmonary Diseases and Critical Care Medicine, Department of Internal Medicine, University of Texas Health Sciences Center at San Antonio and South Texas Veterans Health Care System, San Antonio, TX.
Sonye K DanoffDivision of Pulmonary and Critical Care Medicine, Johns Hopkins University, Baltimore, MD.
Franck RahaghiDepartment of Pulmonary and Critical Care Medicine, Cleveland Clinic Florida, Weston, FL.
Tejaswini KulkarniPulmonary, Allergy and Critical Care, University of Alabama at Birmingham, Birmingham, AL.
Hyun Joo KimDepartment of Medicine, Division of Pulmonary, Allergy, Critical Care, and Sleep, University of Minnesota, Minneapolis, MN.
Pulmonary Fibrosis Foundation Rural Health Outreach Committee∗

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The Pulmonary Fibrosis Foundation Care Center Network (PFF-CCN) provides expertise in the diagnosis and management of interstitial lung diseases (ILDs); however, most centers are in urban areas. Little is known about access to ILD care for patients living in rural areas. Research Question: What are the perspectives of PFF-CCN providers on the accessibility and provision of ILD care for rural patients? Study Design and Methods: A mixed methods survey designed by the Pulmonary Fibrosis Foundation Rural Health Outreach Committee was distributed with weekly reminders to all 68 PFF-CCN sites between November 2021 and February 2022 through REDCap. The survey included 21 closed-ended questions that were analyzed using descriptive statistics and 3 open-ended questions that underwent thematic analysis. Before coding, free text responses were reviewed, and nearly all were sorted into 1 of 2 groups: barriers or facilitators to ILD care. Responses were then coded inductively and sorted into categories, followed by themes drawn from the data. Only 1 survey per PFF-CCN site was analyzed. Results: A total of 68 PFF-CCN sites (providers) completed the survey (100% response rate). Of these, 57% of providers perceived that rural patients often experience delays in diagnosis compared with their urban counterparts, and 47% perceived they often have delays in ILD treatment. The following 3 themes emerged as barriers to ILD care for rural patients: poor access to care (73% of all coded barriers), limited resources (23%), and patient preferences and concerns (3%). Three themes emerged as facilitators to ILD care: local collaboration (49% of all coded facilitators), telemedicine (30%), and patient-centered care (21%). Interpretation: PFF-CCN providers identified several important barriers and facilitators to care for rural patients with ILD occurring at the patient, provider, and health care system levels.

Indexed as

access to careinterstitial lung diseasemixed methodsrural health

Identifiers

PMID42548393
PMCPMC13417808

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.