ArticleEULAR rheumatology open2026
The journey of Europeans with musculoskeletal complaints: the creation of the SPIDeRR's personas.
Article in EULAR rheumatology open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objectives: The Stratification of Patients Using Advanced Integrative Modelling of Data Routinely Acquired for Diagnosing Rheumatic Complaints (SPIDeRR) project aims to improve the patient journey for individuals with musculoskeletal (MSK) complaints due to rheumatic and musculoskeletal diseases (RMDs). The primary objective was to understand patients' experiences navigating the healthcare system to achieve timely diagnosis and treatment for RMDs. Secondary objectives included identifying challenges and opportunities for implementing digital tools for help seeking and diagnosis, thus enhancing access to appropriate treatments. Methods: Based on the patient experience mapping framework, 3 substudies were conducted as follows: (i) a systematic review and stakeholder surveys to identify key stages and touchpoints; (ii) focus groups to gather additional insights; and (iii) synthesis of findings into visual maps and personas highlighting gaps and potential solutions. Results: Substudy 1 (36 studies and 247 survey participants) revealed that navigating the healthcare systems in Europe is complex, facing significant barriers, such as limited specialist access, knowledge gaps, and inconsistent treatment pathways for people with RMDs. Substudy 2 (28 participants with and without RMDs) found that initial symptom management may delay proper care, multiple emotions emerge while waiting for a solution, and preferences for direct specialist access vs general practitioner gatekeeping vary depending on individual and healthcare system. Substudy 3 developed visual representations of 5 evocative patient journeys, outlining stages, obstacles, interactions, and emotions. Conclusions: The journey of Europeans with MSK complaints is intricate and country specific, posing challenges for nontailored solutions. Personalised digital tools, improved healthcare provider education, and efficient communication between care levels are recommended to enhance the patient experience and improve outcomes for individuals with RMDs.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.