Evidence map›Paper›PMID 42539817›Full record

ArticlePalliative care and social practice2026

Changing contexts of death and dying: Influence of the COVID-19 pandemic and voluntary assisted dying legislation on death literacy in Australia.

Sumina Shrestha, Andrea Grindrod, Sora Lee, Kerrie Noonan

Abstract read
In one paragraph

Article in Palliative care and social practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

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5 · Who and what money

Authors and funding

4 authors.

Sumina ShresthaPublic Health Palliative Care Unit, La Trobe University, Melbourne, VIC, Australia.ORCID https://orcid.org/0000-0002-5730-9899
Andrea GrindrodPublic Health Palliative Care Unit, La Trobe University, Melbourne, VIC, Australia.ORCID https://orcid.org/0000-0003-4024-9874
Sora LeeDepartment of Public Health, La Trobe University, Melbourne, VIC, Australia.ORCID https://orcid.org/0000-0002-2665-7794
Kerrie NoonanPublic Health Palliative Care Unit, La Trobe University, Melbourne, VIC, Australia.ORCID https://orcid.org/0000-0001-5349-5041

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The COVID-19 pandemic and the introduction of voluntary assisted dying (VAD) legislation in Australia are major societal exposures that altered the social context around death and dying. Although death literacy is a socially embedded concept, there are limited studies assessing how death-related societal events like COVID-19 and VAD legislation influence its development. Objective: To examine associations of the COVID-19 pandemic and VAD legislation introduction with death literacy, and whether these societal exposures functioned as contextual pathways linking social capital, attitudes, and supportive actions around death and dying with death literacy outcomes. This study assessed death literacy as operationalised by the Death Literacy Index. Design: A cross-sectional national survey. Methods: Participants were recruited through the Online Research Unit from a representative online non-probability panel of 1202 Australian adults, stratified by age, gender, and geographic region. Death literacy was measured using the Revised Death Literacy Index. Multivariate regression examined associations of COVID-19 and VAD legislation with death literacy after adjusting for relevant covariates. Mediation analyses explored whether these societal exposures functioned as indirect contextual pathways linking social factors with death literacy. Results: Of the 1202 participants, 56.4% were female and 43.6% male. Over 40% (483) reported some form of COVID-related experience, while nearly 12% (139) reported experience related to VAD. Multivariate analysis showed that perceived gain of knowledge during the pandemic (B=0.179) and VAD legislation introduction (B=0.319) were positively associated with death literacy, whereas experiencing COVID-related death had a negative association. Social capital, social attitudes toward death, and supportive actions to carers demonstrated significant positive indirect effects, partially mediated by the pandemic and VAD exposure. Personal attitudes toward death showed negative indirect effects. Conclusion: This study highlights the importance of public health palliative care approaches that promote death literacy, especially during public health crises or policy change. Findings reinforce that death literacy does not develop in isolation but is shaped by social environments that enable or limit the exposure, awareness, and engagement to death, dying, and bereavement.

Indexed as

attitudes to deathCOVID-19death educationdeath literacyend-of-life carepalliative carepublic health palliative caresocial capitalsocial supportvoluntary assisted dying

Identifiers

PMID42539817
PMCPMC13424500

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.