Evidence map›Paper›PMID 42539364›Full record

ReviewPalliative medicine reports

The End-of-Life Wishes and Preferences of Adolescents with Cancer: A Scoping Review.

Moe Nakawaga, Yohei Kishi, Michiko Nambu, Anri Inumaru, Mayumi Murabata, Miwa Sakaguchi, Mari Matsuoka, Jun Kako

Abstract readReview
In one paragraph

Review in Palliative medicine reports. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Moe NakawagaGraduate School of Medicine, Mie University, Tsu, Japan.ORCID https://orcid.org/0009-0003-0114-4778
Yohei KishiGraduate School of Medicine, Mie University, Tsu, Japan.ORCID https://orcid.org/0009-0003-1117-8955
Michiko NambuGraduate School of Medicine, Mie University, Tsu, Japan.ORCID https://orcid.org/0009-0008-4248-5890
Anri InumaruGraduate School of Medicine, Mie University, Tsu, Japan.ORCID https://orcid.org/0009-0006-0450-3678
Mayumi MurabataGraduate School of Medicine, Mie University, Tsu, Japan.ORCID https://orcid.org/0009-0005-5183-6726
Miwa SakaguchiGraduate School of Medicine, Mie University, Tsu, Japan.
Mari MatsuokaGraduate School of Medicine, Mie University, Tsu, Japan.
Jun KakoGraduate School of Medicine, Mie University, Tsu, Japan.ORCID https://orcid.org/0000-0001-6875-6275

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

There is a lack of qualitative and systematic literature exploring the wishes and preferences of adolescents with cancer and their connection to identity and emotional well-being. This scoping review aimed to identify and synthesize existing studies on the end-of-life (EOL) wishes and preferences of adolescents with cancer and examine how these wishes and preferences relate to identity and sense of self. The review was conducted to comprehensively explore and map the EOL wishes and preferences of adolescents with cancer, following the PRISMA-ScR guidelines. The PubMed, CINAHL, and Ichushi-Web (Japan Medical Abstracts Society) databases were searched from their inception until June 3, 2024. In addition, an updated search using PubMed was conducted on October 1, 2025. Overall, 7202 articles were screened, of which 8 were ultimately included. All studies were conducted in North America. Two were qualitative studies using semistructured interviews, revealing that adolescents with cancer expressed preferences related to treatment, place of care, and a desire to spend their final moments peacefully with their families. The remaining six studies were quantitative, including four randomized controlled trials evaluating the family-centered advance care planning for teens with cancer (FACE-TC) and two cross-sectional studies based on secondary analyses of FACE-TC session data. In conclusion, this scoping review highlights the need for further evidence accumulation across diverse regions and the limited number of qualitative studies exploring the EOL wishes and preferences of adolescents with cancer. Although Advance Care Planning tools, such as FACE-TC, have shown promise, challenges remain regarding their feasibility and adaptability in clinical practice. Adolescents' wishes and preferences are closely tied to their desire to be recognized as whole persons, not defined by cancer, and incorporating this perspective into care may support their identity. Future efforts should emphasize developmentally appropriate support and qualitative research to ensure that adolescent voices are heard and respected.

Indexed as

adolescentsend of lifepreferencescoping reviewwish

Identifiers

PMID42539364
PMCPMC13422724

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.