Evidence map›Paper›PMID 42533589›Full record

ArticleInternational journal of language & communication disorders

Better Conversations Communication Partner Training for Progressive and Non-Progressive Aphasia: What Can We Learn From Intensive Conversation Groups?

Anna Volkmer, Nina Unger, Rosemary Townsend, Firle Beckley, Mah Rana, Elisabeth Feest, Alys Hollyer, Lyrissa Dixon, Katzia Watkins, Suzanne Beeke

Abstract read
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Article in International journal of language & communication disorders. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

10 authors.

Anna VolkmerDepartment of Language and Cognition, Division of Psychology and Language Sciences, UCL, London, UK.ORCID https://orcid.org/0000-0002-4149-409X
Nina UngerDepartment of Neurology, University Medicine Greifswald, Greifswald, Germany.
Rosemary TownsendDyscover Ltd., Leatherhead, Surrey, UK.
Firle BeckleyFirleB Therapies, UK & Lemonade from Lemons Community Interest Company, Eastbourne, East Sussex, UK.
Mah RanaRoyal College of Art & Birkbeck, University of London, London, UK.
Elisabeth FeestDepartment of Language and Cognition, Division of Psychology and Language Sciences, UCL, London, UK.
Alys HollyerDepartment of Language and Cognition, Division of Psychology and Language Sciences, UCL, London, UK.
Lyrissa DixonDepartment of Language and Cognition, Division of Psychology and Language Sciences, UCL, London, UK.
Katzia WatkinsDepartment of Language and Cognition, Division of Psychology and Language Sciences, UCL, London, UK.
Suzanne BeekeDepartment of Language and Cognition, Division of Psychology and Language Sciences, UCL, London, UK.ORCID https://orcid.org/0000-0002-6772-2820

Funding

National Institute for Health and Care Research (NIHR) Advanced Fellowship award NIHR302240
6 · The paper itself

Abstract

backgroundBetter Conversations Communication Partner Training (CPT) is delivered to dyads comprising a person with a communication difficulty and a key communication partner (CP). Better Conversations focuses on individualised strategies to promote enjoyable and successful interactions. There is no research evidence about the optimal intensity or dosage for CPT. However, intensive comprehensive aphasia programmes are increasingly offered to deliver the high dose needed for effective intervention. This service improvement project aimed to explore the acceptability and outcomes from a BC Intensive Conversation Group for family dyads.

methodsWe developed separate intensive group programs for non-progressive aphasia and primary progressive aphasia (PPA). Each was delivered to four (non-progressive aphasia) or five (PPA) family dyads in a group for 8 days over 2 weeks (4 days face-to-face, four remote) in a university clinic. Intervention comprised understanding how conversation works, identifying individual dyad facilitators and barriers to conversation (using video feedback), practice (in the group and across dyads) of conversation strategies and psychological support. Participants were interviewed about their experiences and acceptability of the intervention. Outcomes post-treatment and at 3-month follow-up included goal attainment, conversation behaviours, communication confidence, participation and relationships. Data were analysed using descriptive statistics and content analysis.

resultsParticipants received a total of 26 h of Better Conversations CPT, delivered for 2.5-3 h per day, over 2 weeks (4 days a week). Participants valued the group format and preferred face-to-face sessions. Dosage was variably tolerated across the groups; people with PPA and their CPs reported the group was too long and intensive, while people with aphasia and their CPs reported intensity and length were acceptable. Of a total of 31 goals set, participants self-rated as having achieved 26 goals and rated no change on five goals. Outcome measures indicated increased confidence and participation across participants with PPA and non-progressive aphasia in both groups.

conclusionsThis service improvement project demonstrates that intensive conversation groups can be acceptable to participants with PwA, PwPPA and their CPs. Participants achieved their conversation goals and reported increased confidence and participation. Future research is required to explore the benefits of different dosages and intensities of CPT and the schedule of interventions over different disease trajectories. WHAT THIS PAPER ADDS: What is already known on the subject Better Conversations Communication Partner Training (CPT) supports people with communication difficulties and their key communication partners through individualised strategies. There is limited evidence on the optimal dosage or schedule for CPT, although intensive aphasia programs are increasingly used to deliver high-dose interventions. What this paper adds to the existing knowledge This service improvement project piloted an intensive group-based model of Better Conversations CPT for family dyads, including those with non-progressive aphasia and primary progressive aphasia (PPA). Intensive conversation groups (27 h over 2 weeks) were acceptable to participants with aphasia and their communication partners, who achieved most of their conversation goals and reported increased confidence and participation. Participants valued the group format and preferred face-to-face sessions, though tolerance for intensity varied: people with PPA found the program too long and intensive, while those with aphasia found it acceptable. What are the potential or clinical implications of this work? Intensive CPT is feasible to deliver and benefits family dyads, including those with non-progressive aphasia and primary progressive aphasia (PPA). Findings highlight the need for future research on tailoring dosage and scheduling across different conditions and disease trajectories.

Indexed as

AphasiaAphasia, Primary ProgressiveCommunicationLanguage TherapyAgedFemaleHumansInterpersonal RelationsMaleMiddle AgedTreatment Outcomeaphasiacommunication partner traininggroupsintensiveprimary progressive aphasia

Identifiers

PMID42533589
PMCPMC13425045

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.