Evidence map›Paper›PMID 42527459›Full record

Articlenpj health systems2025

Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions.

Ashlie Nobilo, Jordana McLoone, Mary White, Hayley Smithers-Sheedy, Jemma Anderson, Raghu Lingam, Cate Bailey, Claire E Wakefield, Jourdan Emily Hancock, Michael Hodgins and 1 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in npj health systems, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Ashlie NobiloPopulation Child Health Research Group, School of Clinical Medicine, University of New South Wales, Sydney, NSW, Australia.
Jordana McLooneBehavioural Sciences Unit, University of New South Wales, Sydney, NSW, Australia.
Mary WhiteDepartment of Endocrinology & Diabetes, The Royal Children's Hospital, Melbourne, Australia.
Hayley Smithers-SheedyThe Cerebral Palsy Alliance Research Institute, The University of Sydney, Sydney, Australia.
Jemma AndersonDepartment of Adolescent medicine, Women's and Children's Hospital, Adelaide, SA, Australia.
Raghu LingamPopulation Child Health Research Group, School of Clinical Medicine, University of New South Wales, Sydney, NSW, Australia.
Cate BaileyMelbourne Health Economics, Centre for Health Policy, University of Melbourne, Melbourne, Victoria, Australia.
Claire E WakefieldBehavioural Sciences Unit, University of New South Wales, Sydney, NSW, Australia.
Jourdan Emily HancockSydney Children's Hospitals Network, Sydney, NSW, Australia.
Michael HodginsPopulation Child Health Research Group, School of Clinical Medicine, University of New South Wales, Sydney, NSW, Australia. michael.hodgins1@unsw.edu.au.
Transition Compass Investigator group

Funding

National Health and Medical Research Council APP2008300
6 · The paper itself

Abstract

Adolescents and young adults (AYAs) with chronic health conditions must transition from paediatric to adult healthcare systems, yet many face significant challenges during this process. This qualitative study explored mechanisms influencing healthcare transition and examined components of a novel intervention-Transition Compass-featuring automated messaging, access to a transition nurse coordinator, and educational modules. Data were collected via individual interviews (n = 15), AYA-parent dyadic interviews (n = 4), and focus groups (n = 15) with AYAs, parents/carers, and healthcare professionals (n = 89) across five Australian states. Key factors affecting transition success included AYAs' evolving autonomy, variable expectations and knowledge across stakeholders, communication gaps, disconnects between healthcare systems, and inconsistencies in care. Participants viewed Transition Compass as a promising strategy to support AYAs through this critical phase.

Identifiers

PMID42527459
PMCPMC13354253

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.