Evidence map›Paper›PMID 42518374›Full record

ArticlePalliative care and social practice2026

'I dream of the airplane, but I cannot board it': Exploring end-of-life aspirations with people who have lived experiences of homelessness.

Merryn Gott, Stella Black, Janine Wiles, Lisa Williams, Tess Moeke-Maxwell, Jackie Robinson

Abstract read
In one paragraph

Article in Palliative care and social practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Merryn GottTe Ārai Palliative Care and End of Life Research Group, Te Kura Tapuhi/School of Nursing, Waipapa Taumata Rau/The University of Auckland, Aotearoa, New Zealand.ORCID https://orcid.org/0000-0003-4399-962X
Stella BlackTe Ārai Palliative Care and End of Life Research Group, Te Kura Tapuhi/School of Nursing, Waipapa Taumata Rau/The University of Auckland, Aotearoa, New Zealand.
Janine WilesTe Ārai Palliative Care and End of Life Research Group, School of Population Health, Waipapa Taumata Rau/The University of Auckland, Aotearoa, New Zealand.
Lisa WilliamsTe Ārai Palliative Care and End of Life Research Group, Te Kura Tapuhi/School of Nursing, Waipapa Taumata Rau/The University of Auckland, Aotearoa, New Zealand.
Tess Moeke-MaxwellTe Ārai Palliative Care and End of Life Research Group, Te Kura Tapuhi/School of Nursing, Waipapa Taumata Rau/The University of Auckland, Aotearoa, New Zealand.
Jackie RobinsonTe Ārai Palliative Care and End of Life Research Group, Te Kura Tapuhi/School of Nursing, Waipapa Taumata Rau/The University of Auckland, Aotearoa, New Zealand.ORCID https://orcid.org/0000-0002-9678-2005

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Little is known about how people experiencing homelessness discuss their end-of-life aspirations or the extent to which these align with current models of Advance Care Planning. Objectives: To explore how people with lived experience of homelessness discuss their end-of-life aspirations and identify implications for Advance Care Planning. Design: A qualitative study was undertaken underpinned by a social constructionist framework. Methods: In-depth interviews were conducted with 16 participants with lived experiences of homelessness living in a major city in Aotearoa New Zealand. Results: Participants had difficulty in formulating aspirations and these were magnified when considering end-of life due to the challenges of predicting future resources, including shelter, food, and sources of social support and connection. End-of-life aspirations discussed involved basic needs being met, for example, through warm and dry shelter, access to a safe, non-chaotic space, and having access to food and showers. A good relationship with a trusted supporter was identified as an important enabler of end-of-life aspirations being realised. However, participants were unable to identify who would support them at end-of-life. Experiences of healthcare shared indicated that people were not provided with appropriate information, and the relational characteristcs were not present, to enable them to make decisions about their care and treatment. Conclusion: Mainstream approaches to Advance Care Planning do not meet the needs of people with lived experience of Homelessness. New professional approaches are needed that are responsive to experiential knowledge and context, connect different care networks, and recognise the injustices linked to structural disadvantage. Approaches must be developed in partnership with people with lived experience of homelessness. Supporting aspirations for living is a necessary first step to consider aspirations when dying for people experiencing structural disadvantage and discrimination.

Indexed as

Advance Care Planningaspirationsend-of-lifeequityhomelessnessIndigenousMāoripalliative care

Identifiers

PMID42518374
PMCPMC13382104

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.