Evidence map›Paper›PMID 42508369›Full record

ArticleNursing outlook2026

Using electronic health record phenotyping to guide extraction of markers of transition to adulthood in young adults with severe chronic illness: A proposed conceptual framework.

Carolina M Gustafson, Traci M Kazmerski, Theresa A Koleck

Abstract read
In one paragraph

Article in Nursing outlook, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Carolina M GustafsonUniversity of Iowa College of Nursing, Iowa City, IA. Electronic address: carolina-gustafson@uiowa.edu.
Traci M KazmerskiDepartment of Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, PA.
Theresa A KoleckUniversity of Pittsburgh School of Nursing, Pittsburgh, PA.

Funding

Technology Research in Chronic & Critical IllnessT32NR008857 · NINR · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI Young Ji Lee · 2005 to 2026
$4.0M
NINR NIH HHS T32 NR008857
6 · The paper itself

Abstract

backgroundYoung adulthood is a crucial and complex developmental period where one cultivates skills necessary to, if necessary, self-manage a severe chronic illness. Currently, minimal research exists on developmental transition in the context of severe chronic illness though, likely because young adults are known to be difficult to recruit/retain from primary data collection. PURPOSE: To increase research on this population, we propose utilizing existing data, including rich electronic health record (EHR) data, and adapting techniques such as EHR phenotyping to extract transition markers. EHR phenotyping is an existing technique that combines structured (e.g., billing/diagnostic codes) and unstructured (e.g., free-text notes) data to create algorithms to represent specific clinical events (e.g., history of pregnancy).

methodsAs such, we have developed a conceptual framework to apply EHR phenotyping to extract developmental markers of transition to adulthood. DISCUSSION/

conclusionWe aim for our framework to increase research on young adults and other vulnerable/hard-to-access populations.

Indexed as

Chronic illnessDevelopmental transitionElectronic health record (EHR) phenotypingYoung adulthood

Identifiers

PMID42508369
PMCPMC13476066

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.