ArticlePloS one2026
Understanding support needs of African and African-Caribbean people living with dementia, their care partners and families, and impacts of delayed support: Identifying inclusive strategies to facilitate social care support: A study protocol.
Article in PloS one, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
African and African-Caribbean (AAC) people living with dementia (PLWD) are a population at high risk of inequitable access to health and social care services, and have poor health and wellbeing outcomes. Research suggests they are likely to experience failings in care, be recognised by services late and at points of crisis, and are at increased risk of institutionalisation. This research aims to examine the experiences of AAC PLWD, their care partners and families of accessing social care services and support. Employing an intersectionality theoretical framework, this study will use a multi-method, flexible exploratory sequential design. An evidence synthesis using the JBI meta-aggregation approach, co-produced with AAC PLWD, their care partners, and families, will be conducted to synthesise existing evidence on the experiences of AAC PLWD, their care partners' and families' of support seeking in the UK. Narrative interviews will involve 3 sequential interviews conducted with 40 AAC PLWD (n = 10 per site), with opportunities for dyadic interviews with care partners and families. Ethnographic fieldwork will be conducted across 4 Local Authority sites within Adult Social Care teams (n = 30 days per site) to provide insight into institutional and organisational processes and cultures, and staff practices and engagement with PLWD. Artistic art workshops will be conducted to facilitate a diverse range of participant voices and support meaningful engagement for AAC PLWD at increased risk of isolation. Ethical approval has been obtained. Dissemination will include peer reviewed publications, conference presentations and free publicly available resources for health and social care professionals, third-sector partners, PLWD and their carer partners.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.