Evidence map›Paper›PMID 42507663›Full record

ArticlePloS one2026

Understanding support needs of African and African-Caribbean people living with dementia, their care partners and families, and impacts of delayed support: Identifying inclusive strategies to facilitate social care support: A study protocol.

Shadreck Mwale, Andy Northcott, Brenda Hayanga, Deborah Edwards, David Truswell, Catherine Coveney, Juanita Hoe, Megan Wyatt, Shabana Roscoe, Katie Featherstone

Abstract read
In one paragraph

Article in PloS one, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Shadreck MwaleThe Geller Institute of Ageing and Memory, University of West London, London, United Kingdom.
Andy NorthcottThe Geller Institute of Ageing and Memory, University of West London, London, United Kingdom.
Brenda HayangaGlobal Health and Social Medicine, Kings College London, London, United Kingdom.
Deborah EdwardsJBI Wales Centre For Evidence Based Care, Cardiff University, Cardiff, United Kingdom.
David TruswellPPI Representative.
Catherine CoveneySchool of Social Sciences and Humanities, University of Loughborough, Loughborough, United Kingdom.
Juanita HoeThe Geller Institute of Ageing and Memory, University of West London, London, United Kingdom.ORCID https://orcid.org/0000-0003-4647-8950
Megan WyattThe Geller Institute of Ageing and Memory, University of West London, London, United Kingdom.
Shabana RoscoeThe Geller Institute of Ageing and Memory, University of West London, London, United Kingdom.ORCID https://orcid.org/0000-0001-8865-8461
Katie FeatherstoneThe Geller Institute of Ageing and Memory, University of West London, London, United Kingdom.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

African and African-Caribbean (AAC) people living with dementia (PLWD) are a population at high risk of inequitable access to health and social care services, and have poor health and wellbeing outcomes. Research suggests they are likely to experience failings in care, be recognised by services late and at points of crisis, and are at increased risk of institutionalisation. This research aims to examine the experiences of AAC PLWD, their care partners and families of accessing social care services and support. Employing an intersectionality theoretical framework, this study will use a multi-method, flexible exploratory sequential design. An evidence synthesis using the JBI meta-aggregation approach, co-produced with AAC PLWD, their care partners, and families, will be conducted to synthesise existing evidence on the experiences of AAC PLWD, their care partners' and families' of support seeking in the UK. Narrative interviews will involve 3 sequential interviews conducted with 40 AAC PLWD (n = 10 per site), with opportunities for dyadic interviews with care partners and families. Ethnographic fieldwork will be conducted across 4 Local Authority sites within Adult Social Care teams (n = 30 days per site) to provide insight into institutional and organisational processes and cultures, and staff practices and engagement with PLWD. Artistic art workshops will be conducted to facilitate a diverse range of participant voices and support meaningful engagement for AAC PLWD at increased risk of isolation. Ethical approval has been obtained. Dissemination will include peer reviewed publications, conference presentations and free publicly available resources for health and social care professionals, third-sector partners, PLWD and their carer partners.

Indexed as

Black PeopleCaregiversDementiaSocial SupportAfrican PeopleCaribbean PeopleFamilyHumansUnited Kingdom

Identifiers

PMID42507663
PMCPMC13405118

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.