Evidence map›Paper›PMID 42499020›Full record

ArticleDementia (London, England)2026

Dementia Citizenship Revisited: New Directions in Theory, Practice, and Lived Experience.

Julia Fischer, Christopher Russell, Pia Kontos, Julie Hayden, Ann-Charlotte Nedlund

Abstract read
In one paragraph

Article in Dementia (London, England), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Julia FischerDepartment for Ethics and Law in Medicine, University of Vienna & Medical University of Vienna, Vienna, Austria.ORCID 0000-0001-7376-8385
Christopher RussellAssociation for Dementia Studies, University of Worcester, Worcester, UK.ORCID 0000-0001-5165-9700
Pia KontosUniversity Health Network, KITE Research Institute, Toronto, ON, Canada.ORCID 0000-0002-8893-2544
Julie HaydenDementia Alliance International, Houston, USA.
Ann-Charlotte NedlundDepartment of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden.ORCID 0000-0003-0204-4536

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Over the past two decades, citizenship discourse has become an important framework within dementia studies, shifting attention from individualised and deficit-oriented understandings of dementia toward the socio-political, legal, institutional, cultural and relational conditions that shape everyday life. This editorial introduces a 2026 special issue on dementia citizenship that explores the growth of this important field of dementia studies since the landmark 2016 special issue on citizenship was published in Dementia: The International Journal of Social Research and Practice. Highlighted in the 2026 special issue are contributions that extend scholarship on agency, participation, embodiment, rights, collaboration and social justice for persons living with dementia across long-term care, community care-collectives, and volunteering among persons living with dementia. Together, the articles demonstrate how citizenship is enacted, constrained, and supported, and how institutional routines, professional practices, interdependence, and recognition shape opportunities for participation and flourishing. Finally, the editorial emphasizes the importance of experiential knowledge in the development and review of this special issue, and in the co-authorship of one of the contributions. Collectively this editorial and the special issue that it introduces aims to stimulate further critical inquiry and practice development to ensure that persons living with dementia have equal opportunities to participate in social life and to flourish.

Indexed as

CitizenshipDementiaLived ExperienceSpecial Issue

Identifiers

PMID42499020
PMCPMC13683902

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.