Evidence map›Paper›PMID 42494782›Full record

ArticleEJHaem2026

Patient Understanding of Multiple Myeloma and Communication Experiences (PUMMaCE): Results From a UK Survey.

Valerie Jenkins, Rachel Hunter, Ruth Habibi, Shirley May, John Jones, Theresa Street, Clare Evans, Anna Cowley, Barbara Collinson, Helena Harder

Abstract read
In one paragraph

Article in EJHaem, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Valerie JenkinsSussex Health Outcomes Research & Education in Cancer Brighton & Sussex Medical School University of Sussex Brighton UK.
Rachel HunterSussex Health Outcomes Research & Education in Cancer Brighton & Sussex Medical School University of Sussex Brighton UK.
Ruth HabibiSussex Health Outcomes Research & Education in Cancer Brighton & Sussex Medical School University of Sussex Brighton UK.
Shirley MaySussex Health Outcomes Research & Education in Cancer Brighton & Sussex Medical School University of Sussex Brighton UK.
John JonesClinical and Experimental Medicine BSMS Brighton & Sussex Medical School Brighton UK.
Theresa StreetEast Sussex Healthcare NHS Trust London England.
Clare EvansEast Sussex Healthcare NHS Trust London England.
Anna CowleyEast Sussex Healthcare NHS Trust London England.
Barbara CollinsonPatient Representative East Sussex England.
Helena HarderSussex Health Outcomes Research & Education in Cancer Brighton & Sussex Medical School University of Sussex Brighton UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Multiple myeloma (MM) is a complex haematological cancer. The terminology used can make discussions more challenging. We designed an online patient survey to explore this area. Methods: Questions with fixed and free text response options explored understanding of MM and phrases Health Care Professionals (HCPs) and family used that were helpful or not. Results: Data from 138 patients revealed that most were satisfied with the HCPs' communication. Many gave examples where information received impacted their understanding, for example, about prognosis, treatment management and support. Conclusion: These findings will inform the production of educational materials to improve communication between patients, their families and HCPs. Trial Registration: The authors have confirmed clinical trial registration is not needed for this submission.

Indexed as

communicationmultiple myelomapatients’ views

Identifiers

PMID42494782
PMCPMC13394373

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.