ReviewResearch involvement and engagement2026
Trends in patient and public involvement in health research 2000-2024.
Review in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
0 citing papers in PubMed.
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Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesPublic involvement in health research has been defined as research carried out 'with' or 'by' members of the public, rather than 'to', 'about', or 'for' them. We examined trends in patient and public involvement (PPI) prevalence in health research based on reporting in original research articles published in ten general medical journals over 25 years (2000-2024). STUDY DESIGN AND
settingFor this bibliometric analysis, OVID Medline from 1 January 2000 to 31 December 2024 was used to identify a random sample of 1,000 individual studies, with 4 articles per journal per year selected from 10 general medical journals (5 adult and 5 pediatric) published over the 25 year-period. All study designs were included. We defined adult studies as those with participants 19 years or older and pediatric studies as those with participants 18 years or younger. Four reviewers independently classified studies as PPI + or PPI- and extracted data on primary study characteristics and on PPI methods for PPI+ studies. Log-linear regression was used to analyze trends over time.
resultsOf 1000 articles, 97/1000 reported PPI (prevalence 10%, 95% CI: 8%-12%). PPI was more prevalent in adult than pediatric journals (13% vs. 7%; P = 0.002). Log-linear regression showed a significant increasing trend in reporting PPI over time (from 0% in 2000 to 38% in 2024) representing an average annual percentage change (APC) of 15.0% (95% CI: 9.6% - 20.6%). Percent PPI+ articles significantly increased over time in adult journals (APC, 22.2%; 95% CI: 16.5% - 28.2%) but not in pediatric journals (APC, 3.0%; 95% CI: -2.1% - 8.4%). By journal, The BMJ (journal with mandatory PPI reporting) had the highest PPI prevalence (24%). By country, PPI was most common in the United States (32%). PPI+ studies were more likely to be an experimental design, conducted in a community setting, and less likely to be multi-country, compared to PPI- studies.
conclusionsOver 25 years, PPI reporting in original health research articles published in general medical journals increased on average, 15% per year. PPI reporting increased significantly in adult journals (on average, 22% per year) but not in pediatric journals. Level of PPI increased over time. CLINICAL TRIAL NUMBER: Not applicable.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.