Evidence map›Paper›PMID 42482378›Full record

SynthesisJournal of applied research in intellectual disabilities : JARID2026

Barriers and Facilitators to Participation in Psychosocial Research for Adults With Intellectual Disabilities: A Systematic Review.

Kirsty Firman, Katie Bigham, Christopher Saville, Elizabeth Burnside

Abstract readSystematic Review
In one paragraph

Synthesis in Journal of applied research in intellectual disabilities : JARID, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Kirsty FirmanNorth Wales Clinical Psychology Programme, Bangor University, Bangor, UK.ORCID https://orcid.org/0000-0002-2658-1435
Katie BighamLearning Disabilities Team, Betsi Cadwaladr University Health Board, Bangor, UK.
Christopher SavilleNorth Wales Clinical Psychology Programme, Bangor University, Bangor, UK.ORCID https://orcid.org/0000-0003-4870-7630
Elizabeth BurnsideNorth Wales Clinical Psychology Programme, Bangor University, Bangor, UK.ORCID https://orcid.org/0000-0002-0155-0843

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPeople with intellectual disabilities often experience challenges to participation in psychosocial research. This review examined the barriers and facilitators affecting their participation.

methodsPreferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were followed. Databases searched included: PsycINFO, PubMed, Web of Science, and Scopus. A narrative synthesis structured using the Socio-Ecological Model, considering levels of influence-intrapersonal, interpersonal, institutional, community, and policy-was used.

resultsThere were specific and shared barriers and facilitators for different levels of influence involved in psychosocial research. Contradictions between levels of influence, including beliefs about attitudes, views around harms, and the use of incentives, are discussed.

conclusionsThe importance of targeting levels of influence utilising different methods to improve the participation of adults with intellectual disabilities in psychosocial research is highlighted.

Indexed as

Intellectual DisabilityPatient ParticipationPatient SelectionAdultHumansbarriersfacilitatorsintellectual disabilitiesrecruitmentresearch participationsystematic review

Identifiers

PMID42482378
PMCPMC13389101

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.