Evidence map›Paper›PMID 42481959›Full record

SynthesisBMC medical research methodology2026

A systematic review and meta synthesis of barriers and facilitators to Black women's participation in healthcare research.

S S Hall, G Clancy, S Patel, N Thorpe, B Majmudar, C Merriman, S Agyapong, J Usman, C Henshall

Abstract readSystematic Review
PubMed Publisher
In one paragraph

Synthesis in BMC medical research methodology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

S S HallNottingham Clinical Trials Unit, School of Medicine, University of Nottingham, Nottingham, NG7 2RD, UK. Sophie.hall@nottingham.ac.uk.ORCID http://orcid.org/0000-0002-9847-8269
G ClancyNottingham Clinical Trials Unit, School of Medicine, University of Nottingham, Nottingham, NG7 2RD, UK.ORCID http://orcid.org/0000-0002-3550-6875
S PatelUniversity of Nottingham, Jubilee Campus, Wollaton Road, Nottingham, NG8 1BB, UK.ORCID http://orcid.org/0000-0002-5537-0717
N ThorpeLibrary and Knowledge Services, Nottinghamshire Healthcare NHS Foundation Trust, Duncan Macmillan House, Mapperley, Nottinghamshire, NG3 6AA, UK.ORCID http://orcid.org/0000-0002-4539-8564
B MajmudarEgality Health Ltd., London, SW16 2LP, UK.ORCID http://orcid.org/0009-0001-2910-3017
C MerrimanOxford University Hospitals NHS Foundation Trust, Oxford, England, UK.ORCID http://orcid.org/0000-0002-3939-5228
S AgyapongOxford Health Clinical Research Facility, Warneford Hospital, Warneford Lane, Oxford, OX3 7JX, UK.ORCID http://orcid.org/0009-0001-3223-8035
J UsmanSchool of Health and Society, University of Salford, Manchester, M6 6PU, UK.ORCID http://orcid.org/0000-0002-0110-9337
C HenshallOxford Brookes University, Oxford School of Nursing and Midwifery, Jack Straw's Lane, Oxford, OX3 0BP, UK.ORCID http://orcid.org/0000-0001-5659-3296

Funding

National Institute for Health and Care Research 206842National Institute for Social Care and Health Research 206842
6 · The paper itself

Abstract

backgroundBlack women are under-represented in clinical research, contributing to persistent health inequities and undermining the validity and generalisability of research findings. Understanding facilitators and barriers to their research engagement is essential to addressing these challenges. This study aimed to identify and synthesise evidence on barriers and facilitators which influence Black women's participation in healthcare research, to inform inclusive recruitment strategies and equitable research designs.

methodsThis systematic review was conducted in accordance with PRISMA guidelines and registered with PROSPERO (CRD42024587308). Findings were narratively synthesised using thematic analysis and discussed iteratively through Patient and Public Involvement. Five databases were searched (CINAHL, PsycInfo, Embase, MIDIRS, MEDLINE) for studies published since 2010. Papers in any language were screened for inclusion. Patient and Public Involvement members informed review objectives and data interpretation. Primary research studies reporting on Black women's experiences, attitudes, and facilitators/barriers to participating in any type of healthcare research. Studies were included if ≥ 50% (to ensure primary representation) of the sample recruited were Black women.

resultsSeventy-two studies were included. Most were from America and spanned research areas relating to oncology, Human Immunodeficiency Virus (HIV), dementia, maternity, and general health. Five overarching themes identified how Black women's participation in healthcare research is shaped by a complexity of factors. These were mistrust, interpersonal experiences, altruism, self-interest, and low health/research literacy and awareness. Patient and Public Involvement consultations concurred that the findings aligned with a "bridge and barriers" analogy, illustrating how various factors can facilitate or prevent Black women from engaging with research opportunities. This provided a clear framework to guide culturally sensitive implementation for researchers, healthcare professionals, and policymakers.

conclusionsInclusive strategies for recruiting Black women into research must focus on co-constructing a bridge between communities and research systems. This requires structural and systemic change in research delivery environments and ongoing collaborations with all stakeholders including Black women, healthcare system providers, and research teams.

trial registrationPROSPERO (CRD42024587308).

Indexed as

Black or African AmericanBlack PeopleHealth Services ResearchPatient ParticipationPatient SelectionFemaleHumansBlack womenClinical trialsCultural competenceHealthcare researchHealth equityParticipation barriersRecruitment strategiesSystematic review

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.