Evidence map›Paper›PMID 42481917›Full record

ArticleJournal of Parkinson's disease2026

Breaking barriers and fighting inequality in Parkinson's disease care: Personal reflections of movement disorders clinicians.

Shen-Yang Lim, Hrishikesh Kumar, Wei Luo, Jonathan Carr, Zakiyah Aldaajani, Cholpon Shambetova, Priya Jagota, Frandy Susatia, Eliza Zhunusova, Zhidong Cen and 3 more

Abstract read
In one paragraph

Article in Journal of Parkinson's disease, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Shen-Yang LimDivision of Neurology, Department of Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.ORCID 0000-0002-6942-2522
Hrishikesh KumarInstitute of Neurosciences Kolkata, Kolkata, India.ORCID 0000-0002-9789-7832
Wei LuoDepartment of Neurology, the Second Affiliated Hospital, Zhejiang University School of Medicine, Zhejiang, China.ORCID 0000-0001-6951-7698
Jonathan CarrDivision of Neurology, University of Stellenbosch, Cape Town, South Africa.ORCID 0000-0002-7677-426X
Zakiyah AldaajaniNeuroscience Department, King Fahad Medical Military Complex, Dhahran, Saudi Arabia.ORCID 0000-0002-4311-6703
Cholpon ShambetovaCenter for Biomedical Research and Innovation, of the I. K. Akhunbaev Kyrgyz State Medical Academy, Bishkek, Kyrgyzstan.ORCID 0000-0002-2547-315X
Priya JagotaChulalongkorn Centre of Excellence for Parkinson's Disease and Related Disorders, Department of Medicine, Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Thai Red Cross Society, Bangkok, Thailand.ORCID 0000-0002-4686-1311
Frandy SusatiaSiloam Hospital Kebon Jeruk, West Jakarta, Indonesia.ORCID 0009-0008-0780-979X
Eliza ZhunusovaCenter for Biomedical Research and Innovation, of the I. K. Akhunbaev Kyrgyz State Medical Academy, Bishkek, Kyrgyzstan.ORCID 0009-0007-1371-0502
Zhidong CenDepartment of Neurology, the Second Affiliated Hospital, Zhejiang University School of Medicine, Zhejiang, China.ORCID 0000-0003-3155-5781
Supriyo ChoudhuryInstitute of Neurosciences Kolkata, Kolkata, India.ORCID 0000-0001-8624-8258
Saeed BohlegaCollege of Medicine, Alfaisal University, Riyadh, Saudi Arabia.
Francisco CardosoMovement Disorders Unit, Neurology Service, Internal Medicine Department, The Federal University of Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0003-0808-0116

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Parkinson's disease (PD) care remains profoundly unequal across and within countries, despite major advances in understanding and treatment. Drawing on PD specialists' personal stories of real-world experiences from diverse regions across Asia, Africa, and South America, this paper highlights the key barriers to equitable PD care and identifies pragmatic, scalable solutions. Across settings, several major barriers consistently emerge: a critical shortage and uneven distribution of trained specialists; geographic disparities limiting access to care; substantial financial barriers, particularly for comprehensive and advanced therapies; fragmented healthcare systems lacking integration and multidisciplinary support; and low public awareness and persistent stigma, leading to delayed diagnosis and treatment. Strategies to address these challenges include workforce development through training, mentorship, and international collaboration; bringing expertise and services closer to patients via outreach programs and the use of "simple" technologies such as telemedicine and mobile communication platforms; ensuring universal access to essential medications, particularly levodopa; integrating multidisciplinary care models; public awareness campaigns and support groups empowering patients and caregivers and reducing stigma; and embedding research into routine care. The experiences presented here illustrate that meaningful progress is achievable through pragmatic solutions, collaborative networks, and sustained commitment to patient-centered care.

Indexed as

advanced therapiesAfricaAsiabarriersdeep brain stimulationdopaminergic infusioninequitylevodopaMiddle EastParkinson's diseaseSouth Americaunderrepresentedunderserved

Identifiers

PMID42481917
PMCPMC13442930

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.