ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026
Vaginal and vulvar cancer patient experiences of the information pathway from pre-diagnosis to treatment.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Informational needs in vulvar cancer and precursor conditions: a social listening study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo describe the information experiences of vaginal and vulvar cancer patients, including satisfaction, needs, and preferred sources at three key touchpoints: pre-diagnosis, diagnosis, and treatment.
methodsThis cross-sectional mixed methods study recruited women aged 18+ years living in Queensland, Australia, and diagnosed with primary vaginal or vulvar cancer between 01 June 2022 and 31 August 2023. We obtained self-reports of satisfaction with cancer information (Satisfaction with Cancer Information Profile, SCIP-B, range 7-35), need for information (study-specific measure designed in consultation with consumers including six items from the health system and information domain of the Supportive Care Needs Survey-Short Form, SCNS-SF34), and preferred sources of receiving information (Health Information National Trends Survey, HINTS). Participant-informed recommendations to improve information provision were derived from qualitative interviews.
resultsOf the 39 women who completed the quantitative questionnaire, 16 also participated in a qualitative interview. Mean scores for satisfaction with information increased from pre-diagnosis (20.8, SD 7.1) to during diagnosis (24.0, SD 8.4) and remained stable during treatment (24.8, SD 8.2). Approximately three-quarters of participants reported at least one moderate-to-high unmet information need at each touchpoint. Doctors, internet searches, and family/friends were the preferred information sources. Seventeen recommendations were developed relevant to pre-diagnosis (n = 2), diagnosis (n = 2), treatment (n = 4), post-treatment (n = 2), and across touchpoints (n = 7).
conclusionsDissatisfaction with information and unmet information needs were prevalent among our participants diagnosed with vaginal or vulvar cancer. A variety of participant-informed recommendations were developed which can guide the improvement of information experiences across the cancer care continuum.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.