ArticleArquivos de neuro-psiquiatria2026
Psychological impact of being a caregiver to children with infantile neuroaxonal dystrophy.
Article in Arquivos de neuro-psiquiatria, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Caring for children with infantile neuroaxonal dystrophy (INAD), a rare and progressive degenerative disease, can compromise mental health and consequently affect the quality of care given; however, there are no studies addressing this issue. Objective: To study mental health, focusing on anxiety, depression, hopelessness, quality of life, and sleep patterns among Brazilian caregivers of children with INAD, identifying associations among the variables. Methods: We enrolled 20 caregivers of children with INAD in a cross-sectional study using the following self-report questionnaires: State-Trait Anxiety Inventory, Patient Health Questionnaire-9, Beck Hopelessness Inventory, World Health Organization Quality of Life, Pittsburgh Sleep Quality Index, and Epworth Sleepiness Scale. We calculated the prevalence of psychological symptoms, and for the analyses of correlations among anxiety, depression, hopelessness, life quality, sleep quality, sociodemographic, and INAD symptoms, a Pearson's correlation test was applied. Results: Caregivers exhibited high levels of mental distress: 95% were depressed, 75% anxious, and all reported some degree of hopelessness. The quality-of-life scores were lowest in the psychological domain, and poor sleep quality was predominant. The correlation analysis uncovered that onset of physical decline in children appeared to be the most pervasive factor associated with mental suffering within our sample. Conclusion: Providing care for children with INAD is associated with severe psychological challenges, particularly in the early stages of the disease. These findings highlight the importance of early psychological screening and structured psychosocial interventions to support caregiver's wellbeing and enhance caregiving capacity.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.