Evidence map›Paper›PMID 42478552›Full record

ArticleChronic respiratory disease

Shared decision-making about prolonged invasive ventilation for adults with myotonic dystrophy type 1.

Jalal Moolji, Erika MacIntyre, Maria Castro Codesal, Janice Richman-Eisenstat

Abstract readEditorial
PubMed Full text at PMC Publisher
In one paragraph

Article in Chronic respiratory disease. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jalal MooljiDivision of Pulmonary Medicine, Department of Medicine, University of Alberta, Edmonton, Canada.ORCID 0009-0009-9741-0623
Erika MacIntyreDivision of Pulmonary Medicine, Department of Medicine, University of Alberta, Edmonton, Canada.
Maria Castro CodesalDivision of Respiratory Medicine, Department of Pediatrics, University of Alberta, Edmonton, Canada.
Janice Richman-EisenstatDivision of Pulmonary Medicine, Department of Medicine, University of Alberta, Edmonton, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The option of tracheostomy and prolonged invasive mechanical ventilation (IMV) for chronic respiratory failure in myotonic dystrophy type 1 (DM1) poses challenges in decision-making. The Myotonic Dystrophy Foundation consensus recommendations on respiratory management do not directly address the implications of this intervention given the progressive physical and cognitive manifestations of DM1. Here, we consider IMV in DM1 using the ethical principles of beneficence, non-maleficence, autonomy and justice. We call for further research on post-tracheostomy morbidity, mortality, and quality of life (QOL) to help guide decision-making. Our ethical analysis has yielded programmatic changes we hope will improve patient outcomes.

Indexed as

Decision Making, SharedMyotonic DystrophyRespiration, ArtificialRespiratory InsufficiencyTracheostomyAdultHumansQuality of Lifeadvanced care planningmyotonic dystrophyprinciple-based ethicsprolonged invasive mechanical ventilationshared decision-makingtracheostomy

Identifiers

PMID42478552
PMCPMC13389123

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.