Evidence map›Paper›PMID 42473297›Full record

Observational studyAutism research : official journal of the International Society for Autism Research2026

'They Even Have the Capacity, but the Places Aren't Prepared to Receive Them': Community Environment and Participation of Autistic Children in a Family-Engaged Research Analysis.

Léia Cordeiro de Oliveira, Cid André Fidelis de Paula Gomes, Gustavo Pietracatelli Janizello, Wallace Pereira Silva, Alice Soper, Monika Novak-Pavlic, Olaf Kraus de Camargo, Soraia Micaela Silva

Abstract readObservational Study
In one paragraph

Observational study in Autism research : official journal of the International Society for Autism Research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Léia Cordeiro de OliveiraPostgraduate Program in Rehabilitation Sciences, Universidade Nove de Julho (UNINOVE), São Paulo, SP, Brazil.ORCID https://orcid.org/0000-0001-7117-2238
Cid André Fidelis de Paula GomesPostgraduate Program in Rehabilitation Sciences, Universidade Nove de Julho (UNINOVE), São Paulo, SP, Brazil.ORCID https://orcid.org/0000-0001-6627-7537
Gustavo Pietracatelli JanizelloPostgraduate Program in Rehabilitation Sciences, Universidade Nove de Julho (UNINOVE), São Paulo, SP, Brazil.ORCID https://orcid.org/0009-0004-6893-9249
Wallace Pereira SilvaPostgraduate Program in Rehabilitation Sciences, Universidade Nove de Julho (UNINOVE), São Paulo, SP, Brazil.ORCID https://orcid.org/0000-0001-8471-6927
Alice SoperCanChild-Centre for Childhood-Onset Disability Research, McMaster University, Hamilton, Canada.ORCID https://orcid.org/0000-0002-7777-2274
Monika Novak-PavlicCanChild-Centre for Childhood-Onset Disability Research, McMaster University, Hamilton, Canada.
Olaf Kraus de CamargoCanChild-Centre for Childhood-Onset Disability Research, McMaster University, Hamilton, Canada.ORCID https://orcid.org/0000-0002-7927-7189
Soraia Micaela SilvaPostgraduate Program in Rehabilitation Sciences, Universidade Nove de Julho (UNINOVE), São Paulo, SP, Brazil.ORCID https://orcid.org/0000-0002-5929-3253

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

To examine the associations between community environmental barriers and support and the participation of autistic children, and to interpret these findings from the perspective of caregivers engaged as research partners. This cross-sectional observational study employed a mixed-methods design. The first phase comprised analytical and exploratory quantitative analyses. Caregivers of autistic children aged 5-12 years reported participation outcomes-frequency, involvement, and desire for change-using the Brazilian version of the Participation and Environment Measure for Children and Youth (PEM-CY) and CARS-BR with 80 caregivers of children aged 5-12. Phase 1 involved path analysis to test associations between community environment, income, autism severity, and participation (frequency, involvement, desire for change). Phase 2 employed a constructivist-interpretivist approach, where five caregivers acted as research partners to interpret quantitative results via reflexive thematic analysis. Quantitative analysis showed no statistically significant associations between environmental factors and participation outcomes, despite frequent reports of barriers. In Phase 2, research partners identified social inclusion, safety, and logistical constraints as critical. They highlighted that low participation often stems from unwelcoming contexts and limited informal peer interaction, rather than a lack of desire to engage. Integrating findings from both phases, the study suggests that the low participation of autistic children in community settings may reflect, at least in part, protective choices adopted in response to contexts perceived as unwelcoming, unsafe, and insufficiently supportive, rather than a lack of desire for participation.

Indexed as

Autistic DisorderCaregiversFamilySocial EnvironmentBrazilChildChild, PreschoolCross-Sectional StudiesFemaleHumansMaleResidence Characteristicsautismchildrencommunitydisability and healthinternational classification of functioningparticipationpatient and public involvementsocial environment

Identifiers

PMID42473297
PMCPMC13599684

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.