ArticleJournal of autism and developmental disorders2026
"Becoming Parents Before Our Time": Experiences and Prospective Caregiving Roles of Emerging Adult Siblings of Individuals With Autism.
Article in Journal of autism and developmental disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeEmerging adult siblings of individuals with autism may become increasingly involved in current and future caregiving during a developmental stage typically associated with identity exploration, autonomy, and life planning. This qualitative study examined how emerging adult siblings describe their present involvement, emotional experiences, and anticipated future responsibilities in relation to a sibling with autism.
methodParticipants were 122 emerging adult siblings of individuals with autism in Israel who completed an anonymous online questionnaire in Hebrew. Written responses to open-ended questions were analyzed using inductive qualitative content analysis. Descriptive frequency counts were used to indicate the relative prominence of themes across the dataset.
resultsFive interrelated themes were identified: emotional overload, worry, and public embarrassment; everyday practical and emotional care; mediation as social interpretation and participation support; premature responsibility and adultification; and anticipated future care and long-term responsibility. The findings show that emerging adult siblings' roles extend beyond occasional assistance and may include ongoing emotional, practical, social, and future-oriented forms of involvement.
conclusionEmerging adult siblings may constitute a distinct group within family support contexts. Their involvement in current and future planning should remain voluntary, supported, and sensitive to their own developmental needs, as well as to the rights and preferences of individuals with autism.
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