Evidence map›Paper›PMID 42451065›Full record

ArticleNutrients2026

Real-World Administration Practices of Sapropterin in Paediatric and Adults with Phenylketonuria: Results from a United Kingdom Cross-Sectional Survey.

Martina Tosi, Sharon Evans, Alex Pinto, Richard Jackson, Catherine Ashmore, Anne Daly, Suzanne Ford, Sharon Buckley, Annabelle G Skidmore, Anita MacDonald

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Nutrients, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Martina TosiDepartment of Dietetics, Birmingham Women's and Children's Hospital, Birmingham B4 6NH, UK.ORCID 0000-0003-4859-5288
Sharon EvansDepartment of Dietetics, Birmingham Women's and Children's Hospital, Birmingham B4 6NH, UK.ORCID 0000-0002-7654-3621
Alex PintoDepartment of Dietetics, Birmingham Women's and Children's Hospital, Birmingham B4 6NH, UK.ORCID 0000-0002-8206-0829
Richard JacksonDepartment of Health Data Science, University of Liverpool, Liverpool L69 3GF, UK.
Catherine AshmoreDepartment of Dietetics, Birmingham Women's and Children's Hospital, Birmingham B4 6NH, UK.
Anne DalyDepartment of Dietetics, Birmingham Women's and Children's Hospital, Birmingham B4 6NH, UK.ORCID 0000-0003-2579-8699
Suzanne FordNational Society for Phenylketonuria, Sheffield S12 9ET, UK.ORCID 0000-0003-1041-2116
Sharon BuckleyIndependent Researcher, Manchester OL12 7DQ, UK.ORCID 0009-0006-9885-7329
Annabelle G SkidmoreHuman Performance and Health Research Group, Birmingham City University, Birmingham B15 3TN, UK.ORCID 0009-0004-4002-2615
Anita MacDonaldDepartment of Dietetics, Birmingham Women's and Children's Hospital, Birmingham B4 6NH, UK.ORCID 0000-0002-2896-3509

Funding

National Society of Phenylketonuria (NSPKU) NA
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

BiopterinsPhenylketonuriasAdolescentAdultChildChild, PreschoolCross-Sectional StudiesDrug Administration ScheduleFemaleHumansInfantInfant, NewbornMaleSurveys and QuestionnairesTabletsUnited KingdomBiopterinssapropterinTabletsdaily exchangeshigh-fat mealphenylalaninephenylketonuriapowderprotein substitutesprotein tolerancesapropterin dihydrochloridetablets

Identifiers

PMID42451065
PMCPMC13364289

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.